Table 1. In- and exclusion criteria.

hEDS cEDS, vEDS HSD	Language: Dutch or French ≥16 years old Belongs to one of the categories:     • Hypermobile type EDS     • Vascular type EDS     • Classical type EDS     • Hypermobility spectrum disorder Diagnosed by the Centre for Medical Genetics at Ghent University Hospital	System condition (CFS, rheumatism, diabetes, neuropathy); Co-disorders
FM	≥16 years old– 70 years old Men or women who completed the online GPS in January 2017	Co-disorder EDS or other disease that can influence the level of participation
Control	Healthy women or men whose age and gender match with an EDS or HSD participant. Language: Dutch or French	Diseases that can influence the level of participation, for example; autoimmune disease

EDS: ‘Ehlers-Danlos’ Syndrome; GPS: Ghent Participation Scale; CFS: Chronic Fatigue Syndrome; HSD: Hypermobility Spectrum Disorder, FM: fibromyalgia; hEDS: hypermobile ‘Ehlers-Danlos’ syndrome; cEDS: classical ‘Ehlers-Danlos’ syndrome; vEDS: vascular ‘Ehlers-Danlos’ syndrome.