Table 2.
Frequency of responses for the EQ-5D-Y-5L, EQ-5D-Y-3L, Self-Rated Health (SRH) score and PedsQL
| Instrument Items | Response options | |||||
|---|---|---|---|---|---|---|
| n (%) | n (%) | n (%) | n (%) | n (%) | n (%) | |
| EQ-5D-Y-5L | No | A little bit | Some/quiet | A lot/really | Cannot/extreme | Missing |
| Mob | 360 (65) | 85 (15) | 24 (4) | 5 (1) | 74 (13) | 2 (0) |
| LAM | 428 (78) | 65 (12) | 19 (3) | 8 (1) | 28 (5) | 2 (0) |
| UA | 352 (64) | 78 (14) | 34 (6) | 23 (4) | 59 (11) | 4 (0) |
| P/D | 343 (62) | 126 (23) | 56 (10) | 17 (3) | 5 (1) | 3 (1) |
| WSU | 348 (63) | 136 (25) | 31 (6) | 12 (2) | 13 (2) | 10 (2) |
| VAS mean (SD) | 82.2 (22.0) | 8 (1) | ||||
| LSS mean (SD) | 8.1 (3.9) | |||||
| EQ-5D-Y-3L | No | Some | A lot | Missing | ||
| Mob | 389 (71) | 82 (15) | 76 (14) | 3 (1) | ||
| LAM | 435 (79) | 85 (15) | 29 (5) | 1 (0) | ||
| UA | 370 (67) | 108 (20) | 70 (13) | 2 (0) | ||
| P/D | 364 (66) | 167 (30) | 19 (3) | 0 (0) | ||
| WSU | 366 (67) | 161 (29) | 23 (4) | 0 (0) | ||
| LSS mean (SD) | 6.9 (2.2) | |||||
| Self-Rated Health | Excellent | Very good | Good | Fair | Poor | Missing |
| SRH score | 192 (35) | 180 (33) | 123 (22) | 38 (7) | 7 (1) | 10 (2) |
| PedsQL | Never | Almost never | Sometimes | Often | Almost always | Missing |
| Hard to walk; 100 m | 311 (57) | 54 (10) | 68 (12) | 19 (3) | 75 (14) | 23 (4) |
| Hard to run | 257 (47) | 57 (10) | 67 (12) | 34 (6) | 111 (20) | 24 (4) |
| Hard to participate in sport/exercise | 256 (47) | 62 (11) | 93 (17) | 35 (6) | 82 (15) | 22 (4) |
| Hard to lift something heavy | 193 (35) | 81 (15) | 132 (24) | 46 (8) | 78 (14) | 20 (4) |
| Hard to bath/shower myself | 411 (75) | 30 (5) | 38 (7) | 19 (3) | 30 (5) | 22 (4) |
| Hard to do household chores | 309 (56) | 63 (11) | 67 (12) | 32 (6) | 56 (10) | 23 (4) |
| Pain or aches | 220 (40) | 96 (17) | 166 (30) | 29 (5) | 20 (4) | 19 (3) |
| Low energy levels | 259 (47) | 87 (16) | 113 (21) | 37 (7) | 32 (6) | 22 (4) |
| Physical Health Summary Score | 73.2 (47.8) | |||||
| Afraid or scared | 246 (45) | 93 (17) | 143 (26) | 23 (4) | 25 (5) | 20 (4) |
| Sad | 258 (47) | 89 (16) | 144 (26) | 29 (5) | 10 (2) | 20 (4) |
| Angry | 234 (43) | 94 (17) | 145 (26) | 36 (7) | 19 (3) | 22 (4) |
| Trouble sleeping | 256 (47) | 78 (14) | 115 (21) | 35 (6) | 47 (9) | 19 (3) |
| Worry about what will happen to me | 214 (39) | 78 (14) | 143 (26) | 36 (7) | 58 (11) | 21 (4) |
| Emotional sub-score mean (SD) | 72.0 (22.0) | |||||
| Trouble getting along with others | 329 (60) | 86 (16) | 91 (17) | 19 (3) | 9 (2) | 16 (3) |
| Others don’t what to be my friend | 324 (59) | 86 (16) | 78 (14) | 23 (4) | 21 (4) | 18 (3) |
| Others tease me | 319 (58) | 66 (12) | 98 (18) | 33 (6) | 16 (3) | 18 (3) |
| Cannot do things others my age can | 248 (45) | 74 (13) | 114 (21) | 42 (8) | 51 (9) | 21 (4) |
| Hard to keep up with others | 298 (54) | 52 (9) | 103 (19) | 35 (6) | 44 (8) | 18 (3) |
| Social sub-score mean (SD) | 80 (49) | |||||
| Hard to pay attention in class | 274 (50) | 77 (14) | 100 (18) | 39 (7) | 38 (7) | 22 (4) |
| Forget things | 161(29) | 102 (19) | 171 (31) | 51 (9) | 45 (8) | 20 (4) |
| Trouble keeping up with schoolwork | 262 (48) | 75 (14) | 111 (20) | 39 (7) | 42 (8) | 21 (4) |
| Miss school because of not feeling well | 247 (45) | 98 (18) | 119 (22) | 29 (5) | 37 (7) | 20 (4) |
| Miss school to go doctor or hospital | 242(44) | 86 (16) | 137 (25) | 32 (6) | 34 (6) | 19 (3) |
| School sub-score mean (SD) | 71.0 (23.0) | |||||
| Psychosocial summary score mean (SD) | 74.0 (23.2) | |||||
| Total score mean (SD) | 73.8 (236) | |||||
N = 550, Mob mobility, LAM looking after myself, UA Usual Activities; P/D pain or discomfort, WSU worried, sad or unhappy, VAS Visual Analogue Scale, LSS Level Sum Score