Table 1.

Participant Demographics and Diagnosed Questions Responses.

Demographic item from survey	Responses
Age
Under 30	0
30-49	2 (2%)
50-59	30 (24%)
60-69	41 (33%)
70-79	42 (34%)
80 or over	10 (8%)
When diagnosed with Parkinson’s
< 2 years ago	19 (15%)
2-5 years ago	53 (42%)
6-10 years ago	35 (28%)
11-20 years ago	17 (14%)
More than 20 years ago	1 (1%)
Does pain impact your daily life?
Yes	88 (70%)
No	28 (22%)
Not sure	9 (7%)
How frequently do you experience pain?
a. Never	9 (7%)
b. Rarely (around once per year)	7 (6%)
c. Sometimes (around once per month)	18 (14%)
d. Frequently (around once per week)	61 (49%)
e. Very frequently (most days)	30 (24%)
Is pain a symptom you discuss with your healthcare professional?
a. No I haven’t discussed pain with a healthcare professional	37 (30%)
b. Yes I’ve discussed with my GP (General Practitioner)	48 (38%)
c. Yes I’ve discussed with my Parkinson’s nurse	60 (48%)
d. Yes I’ve discussed with my Physiotherapist	44 (35%)
e. Yes I’ve discussed with my Occupational Therapist	9 (7%)
f. Yes I’ve discussed with my Dietician	1 (0.8%)
g. Yes I’ve discussed with another healthcare professional (please detail)	33 (28%)
Consultant	14 (11%)
Neurologist	12 (10%)
Pain clinic	3 (2%)
Chiropractor	3 (2%)
Gastroenterologist	1 (0.8%)
What did the healthcare professional do to support you with your pain?
a. Nothing	12 (10%)
b. Advice, education or information	36 (30%)
c. Medication	29 (25%)
d. Exercise	44 (38%)
e. Complementary therapy (e.g. massage, acupuncture)	19 (17%)
f. Other (please detail)	18 (16%)
Injections	1 (0.8%)
Botox	1 (0.8%)
Psychologist referral	1 (0.8%)
Physiotherapy referral	3 (3%)
Consultant referral	3 (3%)
Pain not related to Parkinson’s	2 (2%)
Aid	1 (0.8%)
Leaflet	1 (0.8%)