Table 2.
Management Strategies for Pain.
| Category | Sub category | N | Example |
|---|---|---|---|
| Physical activity | Walking | 9 | Walking and trying to keep fit |
| Pilates | 8 | If I arrive at Pilates feeling bad, I leave feeling better | |
| Gym | 5 | I try to go to the gym | |
| Swimming/ hydrotherapy | 3 | I swim when I can | |
| Stretching | 9 | Do stretching exercises | |
| Exercise | 35 | Lots of exercise | |
| Yoga | 6 | Yoga to stretch my muscles | |
| Dance | 3 | PD dancing | |
| Exercise class | 9 | Parkinson’s exercise class | |
| Cycling | 1 | Occasional cycle | |
| Medication | Paracetamol | 19 | Paracetamol 8 daily |
| Ibuprofen | 14 | Taking lots of ibuprofen every day | |
| Co-codamol | 2 | Taking co-codamol 500mg 2 x day | |
| “Painkillers” | 10 | I take painkillers | |
| Pregabalin | 2 | Pregabalin medication 70 mg twice daily | |
| Gabapentin | 2 | Initially Gabapentin, then pregabalin, pain clinic but medication stopped working. They have not offered anything else. | |
| Amitriptyline | 1 | 10mg amitriptyline daily | |
| Fluoxetine | 1 | I take fluoxetine, which really helps with the stiffness and some of the pain | |
| Aspirin | 1 | Aspirin | |
| Codeine | 1 | Codeine | |
| Sinemet | 2 | Also related to wearing off Sinemet, so next dose may relieve things | |
| Zapain | 1 | Zapain capsules up to 8 in 24 hour period | |
| Hesitation taking medication | 5 | Have not tried Gabapentin…concerns about sedation | |
| Other therapies | Massage/ manual therapy | 10 | Occasional massage |
| Mindfulness | 5 | I have tried…Bowen technique…mindfulness | |
| Bowden technique | 2 | Mental relaxation e.g. reflexology | |
| Reflexology | 3 | Also undergone reflexology, acupuncture,…mindfulness | |
| Acupuncture | 1 | I also use cannabis oil | |
| TENS | 1 | ||
| Cannabis oil | 2 | ||
| Support from healthcare professionals | Physiotherapy | 9 | Regular physiotherapy |
| Chiropractor | 2 | Have consulted with osteopaths, chiropractors | |
| Osteopath | 1 | Pain clinic (1 visit) | |
| Pain clinic | 1 | ||
| Multiple strategies | Medication and exercise | 15 | Exercise, paracetamol |
| Medication, exercise and other therapies | 4 | Regular exercise…mental relaxation e.g. reflexology, massage, very occasionally ibuprofen | |
| Medication, healthcare and exercise | 4 | Private physiotherapy, directed exercise, ibuprofen | |
| Exercise and other therapies | 3 | I exercise and I stretch…I often for a massage within financial constraints | |
| Healthcare, other therapies and exercise | 4 | I do what I can by exercise…do some sort of exercise with a neuro physiotherapist…then if I had worked hard enough I would get a sports massage | |
| No management options have been identified or successful | Tried a range of strategies | 3 | I have had massage and do regular Pilates and stretches, with not a lot of benefit |
| No/unsure | 9 | Not sure what to do | |
| Nothing helps | 5 | ||
| No qualitative response provided | 14 |