Table 3.

Pain Impact on Day to Day Life.

Category	Sub category	N	Example
Type and site of pain	Experience multiple symptoms	24	Long term frozen shoulder, joint and muscle pain, tendonitis
	Low back pain	32	Back is painful, probably due to posture changes
	Shoulder pain	18	Sharp pain and ache in right shoulder
	Joint pain	5	Joint pain
	Muscle pain	3	My muscles contract
	Nerve pain	3	Neurological pain is felt in my toes
	Cramps/spasms	5	Dystonia
	Tendinitis	1
	Arthritis	3	Have arthritis in my back, not sure if the pain is this or PD
	Hip pain	5	It is permanently in the hip which radiates down the front
	Facial pain	1	Pain from tremor
	Pain linked to tremor	3	It moves and changes
	No pattern of pain	4	Abdominal pain, cant get out of bed
	Internal pain	3
	Headache	1
	Wearing off pain	4	Frequent back ache when wearing off
	Restless legs	1	Front of my leg from knee to ankle to top of my foot
	Lower limb pain	12
	Stiffness	10	No pain just stiffness
	Night pain	5	It wakes me up at night
	Morning pain	5	On getting up in the morning, difficulty in moving
Biopsychosocial impact	Impacts movement	18	It makes it difficult to walk
	Pain impacts mood	5	I do get the impression healthcare professionals do not realize the extent of the pain which feedbacks into my low mood/anxiety
			Sometimes I feel overwhelmed by pain
	Feeling overwhelmed	1	It interrupts my sleep and makes me feel pretty miserable most of the time
	Impacts sleep	2	It makes me miserable and at times frightened
	Feels frightened	2	When the pain and tightening occur they are often in association with weakness
	Impacts strength	2	It affects me probably 75-80% of my week
	Impacts daily life	7	Daily pain was 1 reason I retired early
	Influenced retirement	1
No qualitative response		34