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. 2022 May 10;30(8):6839–6849. doi: 10.1007/s00520-022-07113-3

Table 1.

Demographic and medical characteristics of YACCS: participants versus non-participants/norm group

Participants (N = 558) Non-participants (N = 858)a Norm group (N = 655)b
M SD Range M SD Range p M SD Range p
Age at study (years) 25.78 3.33 18.10–30.97 25.48 3.45 18.01–31.00 0.10 24.75 3.79 18.01–30.99 < 0.001
Age at first diagnosis (years) 4.25 3.12 0.00–14.67 4.31 2.99 0.00–14.62 0.73
Time since first diagnosis (years) 20.92 3.31 15.02–29.17 21.18 3.42 14.81–30.93 0.16
N % N % p N % p
Sex < 0.001 0.977
  Male 273 48.9 530 61.8 321 49.0
  Female 285 51.1 328 38.2 334 51.0
Age at first diagnosis (years) 0.86
  0–5 418 74.9 644 75.1
  6–11 128 22.9 199 23.2
  12–15 12 2.2 15 1.7
Time since first diagnosis (years) 0.19
  10–19 258 46.2 375 43.7
  20–29 300 53.8 479 55.8
  30–39 0 0.0 4 0.5
Diagnosisc 0.76
  Leukemia/lymphoma 299 53.6 453 52.8
  Solid tumor 198 35.5 300 35.0
  CNS cancerd 61 10.9 105 12.2
Treatmente 0.10
  Chemotherapy only (with/without surgery) 394 70.6 585 68.3
  Radiotherapy only (with/without surgery) 14 2.5 33 3.9
  Surgery alone 48 8.6 96 11.2
  Combination therapy (chemo + radiotherapy, with/without surgery) 98 17.6 129 15.1
  No treatment 4 0.7 14 1.6
Hematopoietic transplant 0.03
  Yes 46 8.3 46 5.4
  No 511 91.7 811 94.6
Relapse 0.63
  Yes 61 10.9 101 11.8
  No 497 89.1 757 88.2

Significant differences between participants and non-participants and between participants and norm group are presented in bold

aYACCS who did not participate in the present study or any other part of the DCCS-LATER study part 2

bThe norm group consists of young adults from the general Dutch population

cFirst, primary diagnosis

dCentral nervous system and miscellaneous intracranial and intraspinal neoplasm

eFor primary cancers and recurrences