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. 2022 Jun 20;12(6):e058155. doi: 10.1136/bmjopen-2021-058155

Table 1.

English articles included in the review

Outcomes Reference Study design Intervention Effect of intervention Comments
Communication within the household Elbourne et al41 UK RCT Maternity case notes No impact No significant difference was observed between mothers in the case note group and cooperation card group concerning the involvement of the baby’s father. The no of events not reported.
Phipps40 Australia Qualitative Women-held maternity records Positive Women had the opportunity to share what they were experiencing during their pregnancy with their husbands/partners, grandparents, and friends.
Hagiwara et al38 Palestine Quasi-experimental MCH handbook Positive Women experienced more partner involvement during pregnancy, delivery, and child care and reduced misconceptions about pregnancy and child care among family members.
Osaki et al39 Indonesia Cluster RCT MCH handbook Positive Mothers in the intervention arm reported that their husbands showed their support in saving money for delivery (OR=1.82, 95% CI 1.20 to 2.76), keeping their baby warm (OR=1.58, 95% CI 1.02 to 2.46), and giving their infant/child developmental stimulation (OR=1.62, 95% CI 1.06 to 2.48).
Communication between mothers/ caregivers and healthcare providers Elbourne et al41 UK RCT Maternity case notes Positive Women holding their full records were significantly more likely to feel it was easier to talk to doctors and midwives (RR (rate ratio)=1.73, 95% CI 1.16 to 2.59) and in control of their antenatal care (RR=1.45, 95% CI 1.08 to 1.95) than cooperation card holders.
Young et al42 USA Qualitative Family-carried growth record Positive Parents receiving the records appeared more attentive and receptive to nutrition counselling. They also asked more questions and volunteered more pertinent information about their children. The number of events not reported.
Shah et al33 Multicountries Quasi-experimental Home-based maternal record (HBMR) Positive Healthcare providers’ training and involvement from the start of the HBMR scheme promoted maternal, newborn and child health among pregnant women and mothers.
Harrison et al43 South Africa Descriptive prospective study Road-to-Health (RTH) card Mixed Most mothers (74%) in public clinics received some explanation of the card. The sections discussed were weight (58%), immunisation schedules (26%), sensory tests (5%), and developmental milestones (5%). In private clinics, relatively few mothers (31%) received an explanation of the RTH card, and the weight chart interpretation tended to be ignored (92%).
Moore et al37 UK Quasi-experimental Personal child health record (PCHR) No impact Half of the responses included a comment about a perceived lack of communication or the failure of professionals to respond to messages.
Phipps40 Australia Qualitative Women-held maternity records Positive Women believed that carrying their records encouraged the healthcare workers to explain better what was being recorded and why certain things were done. They were aware the women would go home and reread the records.
Bjerkeli Grøvdal et al44
Norway
RCT Parent-held child health record No impact No significant difference in the difficulty parents felt when talking to professionals (nurse, p=0.66; doctor, p=0.78; other doctors, p=0.39, and other health personnel, p=0.60) between parent-held child health record and control groups.
Grippo & Fracolli45
Brazil
Mixed methods Educational booklet Positive The booklet served as a strengthening element in the relationship between family caregivers and the healthcare providers. Frequency of contact is more common with community health agents, followed by nurses.
Walton & Bedford46
UK
Cross-sectional PCHR Mixed Some parents (22%) were not given a satisfactory explanation of using the PCHR when issued to them. Health visitors were more likely to use the PCHR to obtain and record child information than other healthcare providers.
Clendon & Dignam47
New Zealand
Qualitative Child health and development record book Positive As a clinical tool, the record book helped nurses to guide interventions and track mothers’ progress. It is also a valuable tool for mothers to facilitate building a relationship with their nurses.
Hamilton & Wyver48
Australia
Mixed methods Child personal health record (CPHR) Mixed Parent’s lack of engagement with the CPHR could be attributed to healthcare providers’ lack of involvement. However, the CPHR empowered parents to communicate their perceptions about their children’s health.
Hagiwara et al38 Palestine Quasi-experimental MCH handbook Positive The MCH handbook may be an effective communication tool between healthcare providers and women with low and high education during their first pregnancy (p<0.05).
Engida & Simireta49
Ethiopia
Qualitative Speaking books Positive The speaking book allowed mothers to ask questions and receive additional information during book sessions with the health development army (eg, solutions to infants’ throat and tooth problems).
Whitford et al50 Scotland Qualitative Birth plan within woman-held maternity records Mixed The birth plan provided an opportunity to stimulate discussions and enhance communication between pregnant women and healthcare providers. However, not all women experienced the benefits, and staff noted some challenges.
Lee et al51 USA Qualitative Patient passport Positive The passport enriched the overall communication between families and healthcare providers. They could take and refer to the passport book for their child’s recent hospitalisation even after discharge.
McKinn et al34 Vietnam Qualitative MCH handbook No impact Ethnic minority women received didactic, one-way style communication and not context-adjusted information from healthcare providers. Providers relied on written information (MCH handbook) in place of interpersonal communication.
Satisfaction with the information provided by the home-based records Shah et al33 Multi-countries Quasi-experimental HBMR Positive HBMR provided useful information on maternal, newborn and child health. Mothers kept the cards until the end of the evaluation period. The mean record retention in all centres was about 80%.
Jeffs et al55 Australia Quasi-experimental Personal health record (PHR) Positive The most helpful sections of the PHR were records of immunisation (36%), developmental milestones (29%), and progress notes (16%).
McMaster
Bosnia et al56
Cross-sectional PCHR and advice booklet Positive Both parents and older children appreciated the health information content of the booklet. Nearly all had read the booklet, reflecting the lack of other reading materials.
Harrison et al43 South Africa Descriptive prospective study RTH card Mixed Most mothers carried the card, but this number dropped for hospital visits and consultations with private doctors. Mothers hardly understood the weight-for-age chart, immunisation schedule, and milestone section.
Hampshire et al57 UK Cross-sectional PCHR Positive Most of the mothers (82.5%) thought that the PCHR was very good or good. Higher scores for the usage of the PCHR were significantly associated with teenage- (B=1.8, 95% CI 0.84 to 2.75) and first-time mothers (B=0.88, 95% CI 0.35 to 1.4)
Bjerkeli Grøvdal et al44 Norway RCT Parent-held child health record Positive Some parents (65%) were satisfied with parent-held records, and 92% favoured making them permanently available. Satisfaction and support were especially high among parents of children with chronic diseases.
Bhuiyan et al58 Bangladesh Mixed methods MCH handbook Positive Most of the mothers (78%) perceived the MCH handbook as a useful tool.
Grippo & Fracolli45 Brazil Mixed methods Educational booklet Mixed The most important topics were ‘protect and care,’ followed by ‘children’s rights.’ The topic of ‘sick child and accident prevention’ appears to have minor importance among the emerged themes.
Walton & Bedford46 UK Cross-sectional PCHR Positive The level of maternal education that parents can document in their child’s PCHR made them (78%) happy.
Engida & Simireta49 Ethiopia Qualitative Speaking books Positive The speaking book is a good tool to deliver complete information. Caretakers trusted the messages and claimed that they were learning something new.
Du Plessis et al59 South Africa Cross-sectional RTH booklet health promotion messages Mixed Of 1644 caregivers, 68.7% found the messages very important, and 59% regarded them helpful. Some caregivers did not know why the messages were included in the booklet (2.4%) and were unsure of their purpose (2.9%).
Ogawa et al60 Japan Cross-sectional MCH handbook Positive The MCH handbook provided disaster preparedness knowledge, especially among mothers who used the self-reporting sections of the MCH handbook.
Satisfaction with services/provider performance O’Flaherty et al67 Australia Prospective cohort PHR Mixed Both parents and community health staff used PHRs frequently during health visits. However, most private doctors did not find them useful.
Polnay & Roberts68 UK Prospective cohort Nottingham baby book Positive The baby book was well used by most parents, with 80% of them had read all the content by the time their babies were 3 months old. The majority of the parents (70%) used the booklet until their children reached 1 year.
Wright & Reynolds69 UK Prospective cohort PCHR Mixed Parents used the record books for information and regularly took them to baby clinics for health services. Health visitors frequently wrote in the record, compared with only 50% of parents and less than 25% of family physicians.
Lee et al51 USA Qualitative Patient passport Positive Families were satisfied with passport rounds. It added value to make families feel more secure and confident with discharge planning and understand the provision of care during hospitalisation.
Gholipour et al70 Iran Cluster RCT Maternity books Positive The use of maternity books coupled with group support sessions improved service quality and customer quality of maternity care. Mothers became more involved and engaged in the care process.

Mixed effect — home-based record showed some evidence of usefulness but not necessarily a significant effect.

MCH, maternal and child health; RCT, randomised controlled trial.