Table 2.

Identified factors that affected activity within the Facebook group.

	Barriers	Facilitators
Targeted conditions or diagnoses	Group members identified as caregivers of children or youth with a diverse range of conditions or diagnoses, which limited the ability of some members to find disease-specific support.	Participants indicated common struggles and difficulties regardless of condition or diagnosis though all being caregivers of children or youth with CCNa.
Research emphasis	The emphasis on research was perceived as a possible deterrent to joining by some members.	The presence of researchers in the group was perceived by some members as a unique factor that could be used for advocacy.
Privacy of content	The “closed” group (ie, group content and membership list was not visible to nonmembers).	Use of content within the group for research prevented some members from posting or interacting with posts.
Group duration: time since implementation	Some members attributed the lack of group activity to the short period since the group’s launch.	Group activity may be associated with group maturity.

^aCCN: complex care needs.