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. Author manuscript; available in PMC: 2024 Nov 1.
Published in final edited form as: Disabil Rehabil Assist Technol. 2021 Dec 10;18(8):1385–1392. doi: 10.1080/17483107.2021.2010819

Table 2.

Summary of Community Advisory Board Feedback and Proposed Exercise Training Intervention Modification

Component Consider Adding Consider Changing Keep As Designed Proposed Modification
Prescription -More challenging prescription for aerobic exercise
-Additional modalities for aerobic training such as YouTube videos
-Exercises directly related to transferring
-Flexibility and adaptations for setbacks
-Heat safety information and resources
-Guidance on warm-up, cool-down and stretching
-Split aerobic exercise goals into smaller increments (e.g., 15 minutes/4 days)
-Resistance training exercises targeting lower body
-Description of RPE Scale clarifying it is an overall rating that may span a range of values (1-10) during exercise sessions
-Exercise prescription “Tracks” promote inclusion and avoid issues with early defeat
-RPE scale is good for individual intensity rating
-Aerobic exercise prescription clearly identified as a Minimum Goal
-Clear guidance that rest breaks are okay during exercise
-YouTube videos to be provided with post-test materials
-Protocol will be developed for handling setbacks and deviations from exercise training schedule or “Track”
-Directions for warm-up and cool-down will be added to Training Manual
-Directions for RPE Scale will be added to Training Manual
-15 resistance training exercises now approved with one directly related to transferring (Participants will choose 10)
-Stretching Manual in the first Newsletter
Equipment -Digital and print Training Manual
-Other equipment for resistance training (i.e., dexterity and set-up issues)
-Clear instructions for setting up bands
-Instructions for setting up ergometer
-Spirometer
-Option to complete resistance training exercises without weight to learn movements
-Cycle ergometer may be boring or not intense enough
-Lightweight ergometer option may promote independence
-Training Manual content is great and includes thorough information
-Proposed demonstration of resistance training via videos
-Resistance bands are a good tool (i.e., measurable and adaptable)
-Bands with handles and wrist/ankle strap
-Cycle ergometer is best option for aerobic training equipment that is low cost, measurable, and adaptable (resistance options needed and forward/backward capability)
-Fitness tracker is valuable tool
-Options for print and digital versions of all materials will be created and offered
-Wrist weights included as resistance training equipment
-Demonstration videos being created for all resistance training exercises that include set-up Instructions and modifications such as unweighted variations
-Instructions for setting up cycle ergometer will be added to Training Manual
-Spirometer included as “Other Beneficial Exercise” in Newsletter 3 instead of 9.
Coaching -Coach of each gender and allow participants to choose coach
-Weekly group meeting with peers in program
-Questions to discuss with coach at end of each Newsletter
-Coaching options: Physical/Occupational Therapists who know about MS or peers with MS
-Newsletter terminology such as “tired” and “slips”
-Gender of individual described in newsletter “Experience with Exercise and MS”
-Accountability from coaching is key to success
-Newsletters were great, need to be spaced well, encouragement from “Experience” narratives, colors and diagrams great
-“Experience” narratives placed in the beginning was appropriate
-Various types of “Tips”
-“Other Beneficial Activities” were good
-Road map add visual appeal
-Future coaches may be successful participants from the feasibility study
-Include feedback regarding preference for peer interaction during exit interviews
-Questions to discuss with coach added to end of each newsletter
-“Tired” changed to “Fatigued” where appropriate
-“Slips” changed to “Setbacks” where appropriate
-Gender of “Experience” narratives consistent with MS demographics
Outcomes -Pre- and post-test questionnaires should focus on: self-esteem, emotions, independence, depression, symptoms (e.g., spasticity, strength, mobility, fatigue), and transfers
-Weekly symptom checklist with coach
N/A -Post-test semi-structured interviews with research team member who was not a coach will be valuable -Pre-Post Questionnaire will include: emotional health (e.g., depression, anxiety, and self-esteem), independence (with transfer-specific item/scale), comprehensive symptom checklist
-Coaches will ask weekly about symptom status during coaching calls

Notes. RPE= Rate of Perceived Exertion