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. 2021 Dec 6;47(4):456–468. doi: 10.1093/jpepsy/jsab122

Table II.

Focus Group Question Sequence for Parent Group

Question type Focus group question
Introductory question Let us go around the room and have everyone introduce themselves by saying a little bit about their child, such as what school they go to, grade they are in, where they experience pain and how long they have had pain?
Transition question Has there been challenges you have experienced related to your child’s pain? Tell me more about them
Key question Tell me about how your child’s chronic pain was diagnosed. What was your experience of how doctors initially reacted to your child’s pain?
Key question How have teachers and school nurses reacted to your child’s pain? In what ways have they been supportive? In what ways have they not been supportive?
Key question Tell me about how other students and friends reacted to your child’s pain? In what ways have they been supportive? In what ways have they not been supportive?
Key question How do your parents and/or other members of your family support or do not support your child’s pain condition?
Key question Tell me about any time your child has felt excluded or treated unfairly by others because of pain
Key question Tell me about any time your child has been made to feel ashamed of your pain
Key question Tell me about any time your child has been teased or judged negatively because of your pain
Ending question Of all the topics we have discussed today, which of them would you say are most important to you and your child’s experience?
Ending Question If you were to ask other parents about these experiences, what type of questions would you ask? How would you ask them?