Table II.
Focus Group Question Sequence for Parent Group
| Question type | Focus group question |
|---|---|
| Introductory question | Let us go around the room and have everyone introduce themselves by saying a little bit about their child, such as what school they go to, grade they are in, where they experience pain and how long they have had pain? |
| Transition question | Has there been challenges you have experienced related to your child’s pain? Tell me more about them |
| Key question | Tell me about how your child’s chronic pain was diagnosed. What was your experience of how doctors initially reacted to your child’s pain? |
| Key question | How have teachers and school nurses reacted to your child’s pain? In what ways have they been supportive? In what ways have they not been supportive? |
| Key question | Tell me about how other students and friends reacted to your child’s pain? In what ways have they been supportive? In what ways have they not been supportive? |
| Key question | How do your parents and/or other members of your family support or do not support your child’s pain condition? |
| Key question | Tell me about any time your child has felt excluded or treated unfairly by others because of pain |
| Key question | Tell me about any time your child has been made to feel ashamed of your pain |
| Key question | Tell me about any time your child has been teased or judged negatively because of your pain |
| Ending question | Of all the topics we have discussed today, which of them would you say are most important to you and your child’s experience? |
| Ending Question | If you were to ask other parents about these experiences, what type of questions would you ask? How would you ask them? |