Table 1.

List of potential interventions to be implemented in patients with IEMs transitioning care.

	Interventions	Strategies	Goals
Patient	Disease specific education/skills training	•One to one teaching •Printed material •Adolescent friendly website •Group sessions	•Improve understanding •Improve self-management skill •Increase autonomy •Identify high risk situations (i.e. dental procedures)
	Disease identifier	•Wallet cards •Medical alert card •Medical bracelet	•Improve disease awareness •Early initiation of treatments during illness •Improve early contact with medical team
Medical Team	Transition coordinator	•Point of contact for patients •Create point of contacts for extended family members	•Improve continuity of care •Provide transition planning •Prepare patients •Increasing availability of family members for communication support
	Transitional clinic	•Clinic attendance by pediatric and adult physicians •Expand visits to extended family members	•Introduction to transition •Improve continuity of care •Improve information exchange/sharing •Increasing availability of family members for support
	Telemedicine	•Telephone visits •Video visits (Zoom, Facetime, WebEx, Microsoft Teams)	•Improve clinic attendance/follow up through utilization of telemedicine •Improve follow up in patients with limited transportation •Improve follow up for patients that live far from the clinic
Health System	Dedicated emergency treatment center	•Stable hospital for admission •Notify EMS about the special patient	•Consistent, acute treatments •Appropriate transport of patients to selected facilities
	Notify the treatment team for admission	•Insurance company to notify the outpatient team	•Initiate appropriate care and/or transfer if needed
	Enhanced follow ups	•Automatic telephone reminders and/or calls if the appointment is missed	•Improve the rates of follow up and encourage their follow up