Table 1.
Sample of Storytelling Prompts
| Storytelling Prompts | |
|---|---|
| Donors | “Hello, my name is (Name). I donated a kidney to (recipients; ie, Dad, sister, etc)” |
| “When I started to research living donation, the most surprising thing I learned was…” | |
| “I had many private & personal fears and questions about the process, the main ones were…”a | |
| “Different sources of information helped me learn and kept me informed, like…” | |
| “I ultimately decided to donate a kidney because…”a | |
| “My family (children, spouse) worried that…I helped them understand…”a | |
| “It got harder or scary for me when…What helped me get through it was…”a | |
| “Leading up to the procedure, I coped with the stress by…” | |
| “When I share my story, I am often asked the question of…” | |
| “Looking back, the best part about donating a kidney was…” | |
| “What I discovered about myself during/after this experience was…” | |
| “The best advice I could give someone else who is considering being a Living Donor is…”a | |
| Recipients | “Hi, I’m (Name), I received a living kidney donation from… (eg, Dad, Sister, Stranger, etc) about (X) months/years ago.” |
| “My kidney failure began when I was (X) years old. At that time, I was doing (common activities for you before the transplant) … but then I started to notice (changes that affected your daily life)” | |
| “Living without working kidneys meant that… The first time I had a dialysis treatment was … (explain how it felt)” | |
| “I found it…(difficult/easy) to talk about living donation with my family and friends, because…” | |
| “Even with my fears, I decided to try to find a living donor because…”a | |
| “When… (Donor) first said they would think about donating a kidney, I felt…” | |
| “On the day of the procedure, when I was being rolled into the operating room, I was thinking… and feeling…” | |
| “The relationship that I have with… (Donor) today, is… What I learned about myself/others is…” | |
| “Looking back, this is what I didn’t expect. The only thing I regret is…” | |
| “What I learned from this entire journey was…” | |
| “My advice to others who need a kidney is…”a |
a
Indicates prompts selected for the qualitative thematic analysis of this study.