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. 2023 Jan;60(1):82–92. doi: 10.1177/10556656211055006

Table 1.

Overview of Interview Guide.

Demographic information
  • Parent's date of birth

  • Parent's ethnicity

  • Parent's marital status

  • Parent's employment status

  • Child's date of birth

  • Child's ethnicity

  • Child's cleft type

  • Cleft team

  • · Family history (eg other children, known history of CL/P)

Early experiences
  • Experiences of pregnancy

  • Experiences of diagnosis

  • Experiences of birth and postnatal care

  • Introduction to specialist cleft nurse and cleft team

Adjustment and wellbeing
  • Adjustment after birth

  • Positive experiences with baby

Information and support
  • Sources of information

  • Types of information

  • Support from friends and family

  • Support from specialist healthcare professionals

  • Support from CLAPA

  • Evaluation of support/information received (positive, negative, amount, areas for improvement)

Treatment
  • Changes/delays to child's treatment

  • Communication of changes by cleft team

  • Involvement in decision making about child's treatment

  • Concerns around changes/delays

  • Family attempts to mitigate anticipated impacts of changes/delays

  • Evaluation of support through changes/delays

  • Positive outcomes of changes/delays

The future
  • Future treatment plans

  • Covid-19 protocols for treatment

  • Concerns about future

  • Hopes for future