Table 2.
Demographic Information.
| Participants | |||
|---|---|---|---|
| Mother | Fathers | UK census dataa | |
| Parent | 71.4% (n = 10) | 28.6% (n = 4) | |
| Age in years (mean and SD)b | 31.90 (2.685) | 33.25 (4.193) | |
| Ethnicity | |||
| White British | 80% (n = 8) | 100% (n = 4) | 80.5% |
| Other | 20% (n = 2) | 0% (n = 0) | 19.5% |
| Marital status | |||
| Married | 50% (n = 5) | 50% (n = 2) | 47% |
| Engaged / Cohabiting / Long term relationship | 30% (n = 3) | 50% (n = 2) | - |
| Single | 20% (n = 2) | 0% (n = 0) | 35% |
| Employment status prior to birth | |||
| Full time | 70% (n = 8) | 100% (n = 4) | |
| Part time | 20% (n = 2) | 0% (n = 0) | |
| Maternity/paternity leave at time of interview | |||
| Yes | 100% (n = 10) | 0% (n = 0) | |
| No | 0% (n = 0) | 100% (n = 4) | |
| Immediate family history of cleft | |||
| Yes | 0% (n = 0) | 0% (n = 0) | |
| No | 0% (n = 0) | 0% (n = 0) | |
| First child | |||
| Yes | 50% (n = 5) | 75% (n = 3) | |
| No | 50% (n = 5) | 25% (n = 1) | |
| Participants' Childrenc | |||
| CRANE datad | |||
| Age in months (mean and SD)b | 5.30 (1.703) | ||
| Gender | |||
| Male | 80.0% (n = 8) | ||
| Female | 20.0% (n = 2) | ||
| Presence of syndrome | |||
| Yes | 0.0% (n = 0) | ||
| No | 100.0% (n = 10) | ||
| Cleft type | CRANE datad | ||
| UCLP | 40.0% (n = 4) | 21.7% | |
| BCLP | 10.0% (n = 1) | 9.6% | |
| UCL | 40.0% (n = 4) | 25.3% | |
| BCL | 0.0% (n = 0) | ||
| CP | 10.0% (n = 1) | 43.5% | |
b
Ages correct in September 2020.
c
Note that although there were 14 parents, there were only 10 children as there were 4 parent couples (ie, mother and father) who took part.
d
Cleft Registry and Audit Network (CRANE; 2020).