Skip to main content
. Author manuscript; available in PMC: 2022 Jun 23.
Published in final edited form as: Pediatrics. 2021 Sep;148(3):e2020035378. doi: 10.1542/peds.2020-035378

TABLE 2.

Characteristics of Children, Their Primary Caregivers, and Households With and Without FFE

All CSHCN Who Had an Employed Caregiver Within the Past 12 mo (Unweighted N = 14050), Weighted % (95% CI) Subgroups
No Forgone Employment (Unweighted n = 12 327), Weighted % (95% CI) Any Forgone Employment (Unweighted n = 1723), Weighted % (95% CI) P
Child age, y
 0–5 18.0 (16.5–19.4) 16.3 (14.9–17.8) 27.6 (22.7–32.5) <.01
 6–11 38.3 (36.3–40.3) 38.1 (36.0–40.1) 39.9 (33.7–46.2)
 12–17 43.7 (41.7–45.6) 45.6 (43.5–47.7) 32.5 (27.6–37.3)
Child sex
 Male 57.6 (55.6–59.6) 56.9 (54.8–59.0) 61.6 (56.2–67.1) .12
 Female 42.4 (40.4–44.4) 43.1 (40.9–45.2) 38.4 (32.9–43.8)
Child race and/or ethnicity
 Non-Hispanic white 54.5 (52.5–56.6) 56.1 (53.9–58.3) 45.0 (39.4–50.6) .01
 Hispanic 22.6 (20.5–24.8) 20.9 (18.7–23.1) 32.8 (25.9–39.7)
 Non-Hispanic Black 13.9 (12.3–15.5) 14.0 (12.2–15.8) 13.4 (9.8–16.9)
 Other 9.0 (8.0–9.9) 9.0 (7.9–10.0) 8.8 (6.7–11.0)
Child insurance coverage
 Private only 55.3 (53.2–57.4) 58.1 (55.8–60.3) 38.7 (33.6–43.8) .01
 Any public 40.9 (38.3–43.1) 38.0 (35.7–40.2) 58.6 (53.2–63.9)
 No coverage 3.8 (2.9–4.6) 3.9 (3.0–4.9) 2.7 (0.6–4.9)
Child health status
 Excellent or very good 73.5 (71.4–75.7) 77.0 (74.7–79.3) 53.2 (47.1–59.3) .01
 Good, fair, or poor 26.5 (24.3–28.6) 23.0 (20.7–25.3) 46.8 (40.7–52.8)
Child’s special health care need type
 Functional limitations (any) 25.3 (23.2–27.4) 20.9 (18.7–23.0) 51.6 (45.7–57.5) .01
 Prescription medications (only) 32.2 (30.4–33.9) 35.7 (33.7–37.7) 11.0 (7.6–14.4)
 Above-routine service use or specialized services (only) 16.7 (15.3–18.1) 16.9 (15.4–18.3) 15.6 (11.3–19.9)
 Prescription medication and above-routine service use 25.8 (24.3–27.4) 26.5 (24.8–28.2) 21.8 (17.5–26.0)
Child’s level of special health care need complexity
 Less complex health needs 32.1 (30.4–33.9) 35.7 (33.8–37.7) 11.0 (7.6–14.4) .01
 More complex health needs 67.9 (66.1–69.6) 64.3 (62.3–66.2) 89.0 (85.6–92.4)
Child was reported as receiving care in medical home
 Care met medical home criteria 45.1 (43.2–47.1) 48.7 (46.6–50.7) 24.2 (19.8–28.6) .01
 Care did not meet medical home criteria 54.8 (52.9–56.8) 51.3 (49.2–53.4) 75.8 (71.4–80.2)
 Caregiver age in years, mean 42.5 (42.1–42.9) 42.9 (42.5–43.3) 40.3 (39.5–41.2) .01
Caregiver sex
 Male 23.6 (22.1–25.1) 24.5 (22.8–26.2) 18.4 (14.7–22.1) .01
 Female 76.4 (74.9–77.9) 75.5 (73.8–77.2) 81.6 (77.9–85.3)
Highest level of education
 Less than high school 24.7 (22.5–26.9) 23.4 (21.1–25.6) 32.5 (25.6–39.4) .01
 More than high school 75.3 (73.1–77.5) 76.6 (74.4–78.8) 67.5 (60.6–74.4)
Marital status
 Married or living with partner 77.0 (75.3–78.7) 77.3 (75.5–79.1) 75.3 (70.8–79.8) .41
 Never married, divorced, separated, or widowed 23.0 (21.3–24.6) 22.7 (20.8–24.5) 24.7 (20.2–29.2)
Caregiver mental health
 Fair or poor 7.6 (6.2—8.9) 7.2 (5.6–8 7) 9.9 (7.3–12.5) .07
 Excellent, very good, or good 92.4 (91.1–93.8) 92.8 (91.2–94.4) 90.1 (87.5–92.7)
Caregiver physical health
 Fair or poor 10.0 (8.5–11.5) 9.9 (8.1–11.6) 10.8 (7.9–13.6) .60
 Excellent, very good, or good 90.0 (88.5–91.5) 90.1 (88.4–91.9) 89.2 (86.4–92.1)
Flousehold Size
 ≤4 persons 58.0 (55.9–60.1) 57.9 (55.7–60.1) 58.6 (52.3–64.9) .84
 >4 persons 42.0 (39.9–44.1) 43.1 (39.9–44.2) 41.4 (35.1–47.7)
Household FPL ratio, %
 <100 16.5 (14.6–18.4) 15.0 (13.2–16.8) 25.4 (18.5–32.2) .01
 100–199 22.5 (20.6–24.5) 22.2 (20.0–24.3) 24.4 (19.5–29.4)
 200–399 30.2 (28.5–31.9) 30.6 (28.7–32.4) 28.2 (23.7–32.7)
 >400 30.8 (29.2–32.3) 32.2 (30.5–33.9) 22.0 (18.5–25.6)
Participation in government assistance program
 Any 43.6 (41.5–45.7) 41.6 (39.3–43.7) 56.0 (50.4–61.6) .01
 Government cash assistance 4.7 (3.2—6.2) 4.1 (2.8–5.4) 8.3 (1.6–15.0) .10
 Use of food stamps or SNAP 20.2 (18.1–22.2) 18.4 (16.3–20.4) 31.0 (24.1–37.9) .01
 Free or reduced lunch 38.6 (36.4–40.7) 36.7 (34.5–39.0) 49.5 (43.4–55.5) .01
 WIC 11.0 (9.6–12.5) 10.2 (8.6–11.7) 16.1 (11.8–20.5) .01
Annual spending on child’s health care, $
 0 (no health care-related expenses) 29.1 (27.0–31.2) 28.1 (25.9–30.3) 35.2 (28.7–41.8) .01
 1–999 47.0 (45.0–49.0) 49.6 (47.5–51.7) 31.6 (26.5–36.7)
 1000–5000 19.5 (18.2–20.9) 18.9 (17.5–20.3) 23.4 (19.0–27.8)
 >5000 4.4 (3.6—5.0) 3.4 (2.7–4.1) 9.8 (7.6–12.0)
No. hours per week spent on child’s medical care
 0 69.7 (67.8–71.7) 75.0 (73.1–76.9) 38.3 (32.7–42.8) .01
 <1 13.0 (11.8–14.2) 13.4 (12.0–14.6) 11.4 (8.7–14.1)
 1–4 9.0 (8.0–10.1) 6.8 (5.9–14.6) 22.1 (17.4–26.8)
 5–10 3.5 (2.3–4.7) 1.8 (1.1–2.6) 13.1 (6.7–19.7)
 ≥11 4.8 (3.6—5.9) 3.0 (1.8–4.3) 15.1 (11.9–18.5)
No. hours per week spent on care coordination
 0 68.3 (66.5–70.2) 73.4 (71.6–75.3) 38.0 (31.7–44.4) .01
 <1 20.4 (18.9–21.8) 19.8 (18.3–21.3) 23.9 (20.0–27.9)
 1–4 9.0 (7.8–10.2) 5.5 14.4–6.5) 29.7 (24.7–34.8)
 5–10 1.2 (0.9,16) 0.6 (0.4–0.9) 4.7 12.7–6.5)
 ≥11 1.1 (0.2–2.1) 0.7 (0.0–1.8) 3.7 (2.1–5.2)

—, not applicable.