Table 8.
Article | Description Concept | Implementation in the Tool Described | Evaluation on Age Appropriateness Stated by Patient/Provider/Family | Recommendations | |||
---|---|---|---|---|---|---|---|
Statement of Concept Applied | Elements of Tool | Patient | Provider | Family | |||
Baker, 2008 [58] | Implicit | No | NS | NS | NS | NS | Yes |
Christenson, 2010 [51] | Implicit | Yes | Questions adjusted for age and maturity | NS | NS | NS | Yes |
Curtin, 2017 [52] | Implicit | Yes | NS | NS | NS | NS | No |
Dallas, 2012 [53] | Implicit | Yes | NS | NS | NS | NS | No |
Dallas, 2016 [31] | No Description | No | NS | NS | NS | NS | No |
Fahner, 2020 [11] | Explicit | Yes | Booklets and conversation guides, with language adapted to the children | NS | NS | NS | Yes |
Feraco, 2018 [43] | No Description | No | NS | NS | NS | NS | No |
Finlay, 2008 [45] | No Description | No | NS | NS | NS | NS | No |
Fraser, 2010 [54] | Implicit | No | NS | NS | NS | NS | Yes |
Friebert, 2020 [42] | Implicit | No | NS | NS | NS | NS | No |
Gallagher,2018 [55] | Implicit | No | NS | NS | NS | NS | Yes |
Hartley, 2016 [44] | Implicit | No | NS | NS | NS | NS | No |
Hays, 2006 [37] | Implicit | No | NS | NS | NS | NS | Yes |
Hendricks,2017 [38] | No Description | No | NS | NS | NS | NS | No |
Jacobs, 2015 [39] | No description | No | NS | NS | NS | NS | No |
Kazmerski, 2016 [40] | Implicit | No | NS | 90% considered VMC (Voicing My Choices) to be age-appropriate; 66% considered ACP to be appropriate to introduce before the age of 18 or at any age | 58% considered VMC to be appropriate for patient population/age group; 50% found the ideal patient age for ACP discussion was >18 years | NS | No |
Kline, 2012 [46] | No Description | No | NS | NS | NS | NS | No |
Lyon, 2009 [32] | Explicit | Yes | NS | NS | NS | NS | Yes |
Lyon, 2009 [33] | Explicit | Yes | NS | NS | NS | NS | No |
Lyon, 2010 [34] | No Description | No | NS | NS | NS | NS | No |
Lyon, 2013 [35] | Implicit | No | NS | NS | NS | NS | No |
Lyon, 2014 [36] | Implicit | Yes | NS | NS | NS | NS | No |
Lyon, 2019 [47] | No Description | No | NS | NS | NS | NS | No |
Moody, 2020 [41] | No Description | No | NS | NS | NS | NS | No |
Noyes, 2013 [50] | Implicit | Yes | Booklets content and images adapted for age | NS | NS | NS | Yes |
Snaman, 2019 [59] | Explicit | Yes | NS | NS | NS | NS | Yes |
Van Breemen, 2020 [57] | Implicit | Yes | Family-centered language | NS | NS | NS | No |
Wiener, 2008 [49] | Implicit | Yes | Age-appropriate images | 90% declared that all statements on EOL care were appropriate and helpful for someone their age | NS | NS | Yes |
Wiener, 2012 [48] | Implicit | Yes | Wording and questions adjusted for development and a glossary added | No significant tool differences in the degree of help or stress in age groups or differences in document content; AYAs disagreed on whether medical care wishes in the Five Wishes versus MTMWMV (My Thoughts, My Wishes, My Voice) was more appropriate for someone of their age | NS | NS | Yes |
Zadeh, 2015 [56] | Explicit | Yes | Wording and questions adjusted for development and a glossary added |
NS | NS | NS | Yes |
Toce, 2003 [60] | Implicit | Yes | NS | NS | NS | NS | No |
ACP: advance care planning; AYA: adolescents and young adults; EOL: end of life; NS: not specified.