1. Overprotective parents hamper medical treatment. |
patient-related |
3.25 |
4 |
22 |
2. It is difficult to involve parents without interfering with the development of patient autonomy. |
patient-related |
3.07 |
3 |
21 |
3. Adult nephrologists’ training in youth health and adolescent medicine is limited. |
qualification |
2.89 |
3 |
19 |
4. There is a lack of qualified staff to care for the nonmedical needs of patients. |
resources |
2.86 |
3 |
19 |
5. Difficulties at school or work hamper medical treatment. |
patient-related |
2.82 |
3 |
19 |
6. Adult nephrologists’ training in rare, syndromal, and congenital diseases is limited. |
qualification |
2.82 |
3 |
19 |
7. Financing structures and administrative regulations do not allow for coverage of nonmedical needs. |
resources |
2.79 |
3 |
18 |
8. Patients lack autonomy. |
patient-related |
2.75 |
3 |
18 |
9. The relative scarcity of paediatric renal conditions makes it difficult for adult nephrologists to gain experience in the field. |
qualification |
2.71 |
3 |
18 |
10. Patients are oblivious to the severity of their disease. |
patient-related |
2.64 |
3 |
18 |
11. Patients are overstrained by too many changes occurring at the same time (e.g., medical transition plus school, education, and independence from parents). |
preparation & cooperation |
2.75 |
3 |
17 |
12. Structures of integrated health care during transition (e.g., transition clinics, side-by-side consultations, alternating consultations) are missing. |
preparation & cooperation |
2.71 |
3 |
17 |
13. Patients lack the ability to sufficiently express their needs. |
patient-related |
2.64 |
3 |
17 |
14. Patients lack sense of responsibility. |
patient-related |
2.61 |
2,5 |
17 |
15. Patients and/or their families have exaggerated expectations regarding the work and time resources of the adult nephrologist. |
patient-related + resources |
2.64 |
2,5 |
16 |
16. Training (e.g., seminars, training courses) in paediatric nephrology for adult nephrologists is scarce. |
qualification |
2.54 |
3 |
16 |
17. Health care regulations do not allow sufficient time to adequately care for the complex medical needs of former paediatric patients. |
resources |
2.46 |
2 |
15 |
18. Former paediatric patients are more often nonadherent (medication, appointments) compared with my other patients. |
Patient-related |
2.43 |
3 |
15 |
19. Meeting the special needs of former paediatric patients is difficult. |
resources |
2.36 |
2 |
14 |
20. Access to paediatric patient records is difficult. |
Preparation & cooperation |
2.29 |
2 |
14 |
21. Patients lack emotional maturity. |
Patient-related |
2.29 |
2 |
14 |
22. Information beyond medical facts (e.g., social history, behavioural difficulties, substance abuse) is missing. |
preparation & cooperation |
2.25 |
2 |
13 |
23. Cooperation with other medical specialists is difficult in cases of syndromic or multimorbid patients. |
preparation & cooperation |
2.25 |
2 |
13 |
24. Patients are often insufficiently prepared for transfer. |
preparation & cooperation |
2.18 |
2 |
13 |
25. Former paediatric patients distrust me because I cannot prescribe some medications they are used to. |
resources |
2.14 |
2 |
12 |
26. The handing-over is insufficient: relevant data are lacking, provided too late, or not at all provided until requested. |
preparation & cooperation |
2.11 |
2 |
12 |
27. Patients encounter adult nephrologists with scepticism and refusal. |
patient-related |
2.11 |
2 |
11 |
28. Patients are not able to name their primary disease. |
patient-related |
1.96 |
2 |
11 |
29. High turnover of medical staff makes it difficult for patients to build trust. |
resources |
1.86 |
2 |
10 |
30. It is difficult to contact the paediatric nephrologists at university hospitals. |
preparation & cooperation |
1.61 |
1 |
8 |