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. 2022 May 30;9(6):803. doi: 10.3390/children9060803

Table 3.

Mean and median Likert ratings and Wilcoxon rank order of stage 3 survey items (Bonferroni correction: p < 0.0017, Friedman test p < 0.0001).

Item Category Mean Likert Rating Median Likert Rating Wilcoxon Rank
1. Overprotective parents hamper medical treatment. patient-related 3.25 4 22
2. It is difficult to involve parents without interfering with the development of patient autonomy. patient-related 3.07 3 21
3. Adult nephrologists’ training in youth health and adolescent medicine is limited. qualification 2.89 3 19
4. There is a lack of qualified staff to care for the nonmedical needs of patients. resources 2.86 3 19
5. Difficulties at school or work hamper medical treatment. patient-related 2.82 3 19
6. Adult nephrologists’ training in rare, syndromal, and congenital diseases is limited. qualification 2.82 3 19
7. Financing structures and administrative regulations do not allow for coverage of nonmedical needs. resources 2.79 3 18
8. Patients lack autonomy. patient-related 2.75 3 18
9. The relative scarcity of paediatric renal conditions makes it difficult for adult nephrologists to gain experience in the field. qualification 2.71 3 18
10. Patients are oblivious to the severity of their disease. patient-related 2.64 3 18
11. Patients are overstrained by too many changes occurring at the same time (e.g., medical transition plus school, education, and independence from parents). preparation & cooperation 2.75 3 17
12. Structures of integrated health care during transition (e.g., transition clinics, side-by-side consultations, alternating consultations) are missing. preparation & cooperation 2.71 3 17
13. Patients lack the ability to sufficiently express their needs. patient-related 2.64 3 17
14. Patients lack sense of responsibility. patient-related 2.61 2,5 17
15. Patients and/or their families have exaggerated expectations regarding the work and time resources of the adult nephrologist. patient-related + resources 2.64 2,5 16
16. Training (e.g., seminars, training courses) in paediatric nephrology for adult nephrologists is scarce. qualification 2.54 3 16
17. Health care regulations do not allow sufficient time to adequately care for the complex medical needs of former paediatric patients. resources 2.46 2 15
18. Former paediatric patients are more often nonadherent (medication, appointments) compared with my other patients. Patient-related 2.43 3 15
19. Meeting the special needs of former paediatric patients is difficult. resources 2.36 2 14
20. Access to paediatric patient records is difficult. Preparation & cooperation 2.29 2 14
21. Patients lack emotional maturity. Patient-related 2.29 2 14
22. Information beyond medical facts (e.g., social history, behavioural difficulties, substance abuse) is missing. preparation & cooperation 2.25 2 13
23. Cooperation with other medical specialists is difficult in cases of syndromic or multimorbid patients. preparation & cooperation 2.25 2 13
24. Patients are often insufficiently prepared for transfer. preparation & cooperation 2.18 2 13
25. Former paediatric patients distrust me because I cannot prescribe some medications they are used to. resources 2.14 2 12
26. The handing-over is insufficient: relevant data are lacking, provided too late, or not at all provided until requested. preparation & cooperation 2.11 2 12
27. Patients encounter adult nephrologists with scepticism and refusal. patient-related 2.11 2 11
28. Patients are not able to name their primary disease. patient-related 1.96 2 11
29. High turnover of medical staff makes it difficult for patients to build trust. resources 1.86 2 10
30. It is difficult to contact the paediatric nephrologists at university hospitals. preparation & cooperation 1.61 1 8