Table 3.
Mean and median Likert ratings and Wilcoxon rank order of stage 3 survey items (Bonferroni correction: p < 0.0017, Friedman test p < 0.0001).
Item | Category | Mean Likert Rating | Median Likert Rating | Wilcoxon Rank |
---|---|---|---|---|
1. Overprotective parents hamper medical treatment. | patient-related | 3.25 | 4 | 22 |
2. It is difficult to involve parents without interfering with the development of patient autonomy. | patient-related | 3.07 | 3 | 21 |
3. Adult nephrologists’ training in youth health and adolescent medicine is limited. | qualification | 2.89 | 3 | 19 |
4. There is a lack of qualified staff to care for the nonmedical needs of patients. | resources | 2.86 | 3 | 19 |
5. Difficulties at school or work hamper medical treatment. | patient-related | 2.82 | 3 | 19 |
6. Adult nephrologists’ training in rare, syndromal, and congenital diseases is limited. | qualification | 2.82 | 3 | 19 |
7. Financing structures and administrative regulations do not allow for coverage of nonmedical needs. | resources | 2.79 | 3 | 18 |
8. Patients lack autonomy. | patient-related | 2.75 | 3 | 18 |
9. The relative scarcity of paediatric renal conditions makes it difficult for adult nephrologists to gain experience in the field. | qualification | 2.71 | 3 | 18 |
10. Patients are oblivious to the severity of their disease. | patient-related | 2.64 | 3 | 18 |
11. Patients are overstrained by too many changes occurring at the same time (e.g., medical transition plus school, education, and independence from parents). | preparation & cooperation | 2.75 | 3 | 17 |
12. Structures of integrated health care during transition (e.g., transition clinics, side-by-side consultations, alternating consultations) are missing. | preparation & cooperation | 2.71 | 3 | 17 |
13. Patients lack the ability to sufficiently express their needs. | patient-related | 2.64 | 3 | 17 |
14. Patients lack sense of responsibility. | patient-related | 2.61 | 2,5 | 17 |
15. Patients and/or their families have exaggerated expectations regarding the work and time resources of the adult nephrologist. | patient-related + resources | 2.64 | 2,5 | 16 |
16. Training (e.g., seminars, training courses) in paediatric nephrology for adult nephrologists is scarce. | qualification | 2.54 | 3 | 16 |
17. Health care regulations do not allow sufficient time to adequately care for the complex medical needs of former paediatric patients. | resources | 2.46 | 2 | 15 |
18. Former paediatric patients are more often nonadherent (medication, appointments) compared with my other patients. | Patient-related | 2.43 | 3 | 15 |
19. Meeting the special needs of former paediatric patients is difficult. | resources | 2.36 | 2 | 14 |
20. Access to paediatric patient records is difficult. | Preparation & cooperation | 2.29 | 2 | 14 |
21. Patients lack emotional maturity. | Patient-related | 2.29 | 2 | 14 |
22. Information beyond medical facts (e.g., social history, behavioural difficulties, substance abuse) is missing. | preparation & cooperation | 2.25 | 2 | 13 |
23. Cooperation with other medical specialists is difficult in cases of syndromic or multimorbid patients. | preparation & cooperation | 2.25 | 2 | 13 |
24. Patients are often insufficiently prepared for transfer. | preparation & cooperation | 2.18 | 2 | 13 |
25. Former paediatric patients distrust me because I cannot prescribe some medications they are used to. | resources | 2.14 | 2 | 12 |
26. The handing-over is insufficient: relevant data are lacking, provided too late, or not at all provided until requested. | preparation & cooperation | 2.11 | 2 | 12 |
27. Patients encounter adult nephrologists with scepticism and refusal. | patient-related | 2.11 | 2 | 11 |
28. Patients are not able to name their primary disease. | patient-related | 1.96 | 2 | 11 |
29. High turnover of medical staff makes it difficult for patients to build trust. | resources | 1.86 | 2 | 10 |
30. It is difficult to contact the paediatric nephrologists at university hospitals. | preparation & cooperation | 1.61 | 1 | 8 |