Table 2.
Development of key health care data standards for people with multiple chronic conditions.
| Organization | Project | Time frame | Description | Intended users | Fields/domains | Standards | Outputs |
| Center for Medicare and Medicaid Services | Data Element Library | 2018-present | Centralized resource for Center for Medicare and Medicaid Services assessment instrument data elements (eg, questions and responses) and their associated health information technology standards. | Inpatient rehabilitation facilities, home health agencies, long-term care hospitals, skilled nursing facilities, hospice care, home and community-based services | IRFa Patient Assessment Instrument, Outcome and Assessment Information Set; LTCHb Continuity Assessment Record and Evaluation Data Set; SNFc Minimum Data Set; Hospice Item Set; Functional Assessment Standardized Items | Clinical terminology | Standardized data elements relevant to postacute care |
| Social Interventions Research and Evaluation Network | Gravity Project | 2019-present | Develop structured data standards to reduce barriers to documentation and exchange of social determinants of health data, including social risks and protective factors | Health care | Food insecurity, housing instability and homelessness, inadequate housing, transportation access; additional domains to be determined | FHIRd; clinical terminology | Social determinants of health FHIR implementation guide |
| Center for Medicare and Medicaid Services and The Alliance to Modernize Healthcare | Post-Acute Care Interoperability Project | 2019-present | Advance interoperable health data exchange between postacute care and other providers, patients, and key stakeholders across health care. | Postacute care, long-term care hospitals, home health agencies, skilled nursing facilities, inpatient rehabilitation facilities | Cognitive status; functional status; additional domains to be determined | FHIR; clinical terminology |
Cognitive status, FHIR implementation guide, functional status FHIR implementation guide |
aIRF: Inpatient Rehabilitation Facility
bLTCH: Long-Term Care Hospital
cSNF: Skilled Nursing Facility
dFHIR: Fast Healthcare Interoperability Resources