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. 2022 Jun 10;24(6):e36569. doi: 10.2196/36569

Table 2.

Development of key health care data standards for people with multiple chronic conditions.

Organization Project Time frame Description Intended users Fields/domains Standards Outputs
Center for Medicare and Medicaid Services Data Element Library 2018-present Centralized resource for Center for Medicare and Medicaid Services assessment instrument data elements (eg, questions and responses) and their associated health information technology standards. Inpatient rehabilitation facilities, home health agencies, long-term care hospitals, skilled nursing facilities, hospice care, home and community-based services IRFa Patient Assessment Instrument, Outcome and Assessment Information Set; LTCHb Continuity Assessment Record and Evaluation Data Set; SNFc Minimum Data Set; Hospice Item Set; Functional Assessment Standardized Items Clinical terminology Standardized data elements relevant to postacute care
Social Interventions Research and Evaluation Network Gravity Project 2019-present Develop structured data standards to reduce barriers to documentation and exchange of social determinants of health data, including social risks and protective factors Health care Food insecurity, housing instability and homelessness, inadequate housing, transportation access; additional domains to be determined FHIRd; clinical terminology Social determinants of health FHIR implementation guide
Center for Medicare and Medicaid Services and The Alliance to Modernize Healthcare Post-Acute Care Interoperability Project 2019-present Advance interoperable health data exchange between postacute care and other providers, patients, and key stakeholders across health care. Postacute care, long-term care hospitals, home health agencies, skilled nursing facilities, inpatient rehabilitation facilities Cognitive status; functional status; additional domains to be determined FHIR;
clinical terminology
Cognitive status, FHIR implementation guide, functional status FHIR implementation guide

aIRF: Inpatient Rehabilitation Facility

bLTCH: Long-Term Care Hospital

cSNF: Skilled Nursing Facility

dFHIR: Fast Healthcare Interoperability Resources