Table 3.
Patient- and family member-related data
| Time point of assessment | Patient | Family member | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|
| T0 | T1 | T2 | T3 | T4 | T0 | T1 | T2 | T3 | T4 | |
| Demographics | ||||||||||
| Age, gender, civil status (T2–T4 change), Education | X | X | X | X | X | |||||
| Type of family member (T0), primary carer (yes/no) | X | X | X | X | ||||||
| Co-habiting with patient (yes/no), frequency of contact | X | |||||||||
| Travel time to hospital | X | |||||||||
| Health status | ||||||||||
| Medical diagnosis (MDSi) | X | X | ||||||||
| Trauma (yes/no); if yes, AISa | X | |||||||||
| Mechanical ventilation and circulary support (T0: yes/no, T1: # of days) | X | X | ||||||||
| SAPS-2b | X | |||||||||
| NEMSc, SOFAd | X | X | ||||||||
| Death (yes/no); if yes, date, cause, placee | X | X | X | X | X | |||||
| Organ donation (yes/no); if yes, organ, surrogate dm) | X | |||||||||
| Functional status (Katz ADL/Lawton IADL)e | X | X | X | |||||||
| Prior/present psychiatric diagnosis (yes/no) | X | |||||||||
| Self-perceived health (VAS) | X | X | X | X | X | |||||
| Care utilization | ||||||||||
| Cause of admission | X | |||||||||
| Type of admission (expected, unexpected), admitted from | X | |||||||||
| Surgery (emergency, planned, none) | X | |||||||||
| Previous ICU stays (yes/no) | X | |||||||||
| Prior need for informal/ formal care (yes/no)f | X | |||||||||
| Length of ICU stay | X | |||||||||
| Discharge/transfer destination, planned vs. unexpected | X | |||||||||
| Need for informal/formal care (yes / no); if yes, change, hours/frequency, more/less than before ICU treatment)e | X | X | X | |||||||
| Prior/current/new psychological/psychiatric treatment (yes / no) | X | X | X | X | X | |||||
| Use of prescription drugs | X | X | X | X | X | |||||
| Current treatment for a chronic condition (yes/no) | X | |||||||||
| Number of family physician visits/hospitalizations (if yes: related to critical illness yes/no/length of stay) | X | X | X | X | ||||||
| Previous ICU experience (as patient, as family of the patient) | X | |||||||||
| Family satisfaction with prior care experience (VAS) | X | |||||||||
| Family satisfaction with care on hospital wards (VAS) | X | |||||||||
| Work situation | ||||||||||
| Level of employment, income | X | |||||||||
| Change in level of employment (yes / no); if yes: related to critical illness yes/no), new income | X | X | X | X | ||||||
| Sick leave/absence from work (if yes: # of (half-)days) | X | X | X | X | X | |||||
| Presenteeism | X | X | X | X | ||||||
aAbbreviated Injury Scale
bSequential Organ Failure Assessment Score
cNine equivalents of nursing manpower use score
dSimplified Acute Physiology Score
ePatient-related information at T2, T3, T4 obtained from family member
fPatient-related information at T0 obtained from family member