Table 2.
Aim | First period | Second period | On request | On appearence of FFI |
---|---|---|---|---|
Consolidating the relationship between family members of participants and within the families of origin | X | |||
Promoting the knowledge and relational bonds in the entire relational FFI group | X | |||
Motivating and Involving to participate in the study | X | X | ||
Promoting awareness and fostering the initiative of belonging to the research group | X | |||
Preparing for the exit and acceptance of the study before moving to genetic counselling | X | |||
Psychological support | X | X | X | X |
Accompaniment at the end of life | X | |||
Working through mourning | X | X | ||
Continuous monitoring of the participants and their families, with self-report instruments | X | X |