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. 2022 Jun 27;12(6):e055779. doi: 10.1136/bmjopen-2021-055779

Table 5.

Questionnaires and patient-reported outcomes

Adult cohort Paediatric cohort
Disease-specific For Crohn’s disease
HBI54
PDAI65 		AbbpCDAI56
PDAI65
For ulcerative colitis or unclassified IBD
SCCAI55 PUCAI57
Quality of life EQ-5D69
SIBDQ70
IBD-DI71
FACIT-F72
OHIP-5		 IMPACT III73
Evaluation of musculoskeletal and dermatological symptoms Section 3.3.4 and online supplemental file 2 JADAS50
Environmental factors Revised version of environmental factors scheme by IOIBD74
Dietary questionnaire (‘Hjertekost’)75 		Revised version of environmental factors scheme by IOIBD74
Dietary questionnaire (‘Hjertekost’)75

AbbpCDAI, Abbreviated Paediatric CD Activity Index; EQ-5D, European Quality of life - 5 Dimensions; FACIT-F, Functional Assessment of Chronic Illness TherapyFatigue; HBI, Harvey-Bradshaw Index; IBD-DI, Inflammatory Bowel Disease-Disability Index; IOIBD, International Organisation of Inflammatory Bowel Disease; JADAS, Juvenile Disease Activity Score; PDAI, Perianal Disease Activity Index; PUCAI, Paediatric Ulcerative Colitis Activity Index; SCCAI, Simple Clinical Colitis Activity Index; SIBDQ, Short Inflammatory Bowel Disease Questionnaire.