Table 1.
Patient Demographics at the Time of Listing (N=26)
| Age, y | 8.5 (2.6–12.5) |
| Male sex | 12 (46.2) |
| History of CHD | 21 (80.8) |
| CHD lesions (N=21) | |
| Complete atrioventricular septal defect | 9 (42.9) |
| Unbalanced atrioventricular septal defect | 5 (23.8) |
| Hypoplastic left heart syndrome | 2 (9.5) |
| Tetralogy of fallot | 2 (9.5) |
| Atrial septal defect/patent ductus arteriosus* | 1 (4.8) |
| Patent ductus arteriosus* | 1 (4.8) |
| Tetralogy of fallot/atrioventricular septal defect | 1 (4.8) |
| Prior CHD surgery | 19 (73.1) |
| Indication for listing | |
| Failed repair of CHD | 16 (61.5) |
| Anthracycline induced cardiomyopathy | 5 (19.2) |
| CHD deemed too high risk for repair | 2 (7.7) |
| Dilated cardiomyopathy | 2 (7.7) |
| Lymphocytic myocarditis | 1 (3.8) |
| Blood type | |
| O | 7 (29.2) |
| A | 12 (50) |
| B | 4 (16.7) |
| AB | 1 (4.2) |
| Race or ethnicity | |
| White race | 16 (61.5) |
| Black race | 5 (19.2) |
| Hispanic ethnicity | 5 (19.2) |
| Location | |
| ICU | 18 (69.2) |
| Inpatient, not in ICU | 2 (7.7) |
| Outpatient | 6 (23.1) |
| Support at listing | |
| Ventilator | 4 (15.4) |
| ECMO | 1 (3.8) |
| Inotropes | 15 (57.7) |
| Inhaled nitric oxide | 1 (3.8) |
| Prostacyclin | 1 (3.8) |
| Ventricular assist device | 9 (34.6) |
| Ventricular assist device type (N=9) | |
| Berlin EXCOR | 5 (55.6) |
| HeartWare HVAD | 3 (33.3) |
| Thoratec PVAD | 1 (11.1) |
| Biventricular support | 3 (33.3) |
| Functional status | |
| Performs most age‐appropriate activities | 3 (12) |
| Performs age‐appropriate activities with assistance | 10 (40) |
| Requires assistance for all activities | 6 (24) |
| Not applicable (patient aged <1 y) | 6 (24) |
| Prior malignancy | 5 (19.2) |
| Malignancy type (N=5) | |
| AML | 4 (80) |
| ALL | 1 (20) |
| Underwent pretransplant catheterization | 19 (73.1) |
| Listing status (United States only; N=21) | |
| 1A | 14 (66.7) |
| 1B | 3 (14.3) |
| 2 | 4 (19) |
Data are reported as frequency (percentage) for categorical and median (interquartile range) for continuous variables. ALL indicates acute lymphocytic leukemia; AML, acute myelocytic leukemia; CHD, congenital heart disease; ECMO, extracorporeal membrane oxygenation; and ICU, intensive care unit.
*
Indication for transplantation in these patients was dilated cardiomyopathy.