. 2022 Jun 29;32:23. doi: 10.1038/s41533-022-00285-9

Table 2.

Understanding COPD.

Frame of reference (current PR/menu-based approach pathway) and Item type	Participation rate (%)	Category	Sub-category
Current; hindering	28	Knowledge of COPD management	Patient knowledge AB05P: “It’s got worse since March. When I had that first [exacerbation], I’d left it because I didn’t realise that you could get the steroids for it or anything.” HCP knowledge AB12H: “I asked [my colleagues] to put their hands up—I asked them the question Would you prefer to have a heart attack or infective exacerbation of COPD?’ And loads of people said infective exacerbation of COPD, and these are people that treat patients with COPD and heart attack all the time. And they didn’t even know that you’ve got a higher mortality risk with an infective exacerbation so I think as [healthcare] professionals we don’t know therefore the patients don’t know.” Knowledge within society AB08P: “…when you tell somebody that you’ve got COPD and they say ‘What do you mean?’ ‘Well you’ve heard of asthma, it’s the next bit up.’ ‘Eh!’ Unless they’re medical people other people have never heard of it. Nor had I til I got it, but there you go.”
Current; Wish list	36	Building knowledge of COPD and self-management AB01H: “I think anyone who is given that diagnosis should have to go through a programme and I know they perhaps do not need an exercise programme at that point but it’s almost like they need something like an education programme.”

Frame of reference (current PR/menu-based approach pathway) and Item type

Participation rate (%)

Category

Sub-category

Current; hindering

Knowledge of COPD management

Patient knowledge

AB05P: “It’s got worse since March. When I had that first [exacerbation], I’d left it because I didn’t realise that you could get the steroids for it or anything.”

HCP knowledge

AB12H: “I asked [my colleagues] to put their hands up—I asked them the question Would you prefer to have a heart attack or infective exacerbation of COPD?’ And loads of people said infective exacerbation of COPD, and these are people that treat patients with COPD and heart attack all the time. And they didn’t even know that you’ve got a higher mortality risk with an infective exacerbation so I think as [healthcare] professionals we don’t know therefore the patients don’t know.”

Knowledge within society

AB08P: “…when you tell somebody that you’ve got COPD and they say ‘What do you mean?’ ‘Well you’ve heard of asthma, it’s the next bit up.’ ‘Eh!’ Unless they’re medical people other people have never heard of it. Nor had I til I got it, but there you go.”

Current; Wish list

Building knowledge of COPD and self-management

AB01H: “I think anyone who is given that diagnosis should have to go through a programme and I know they perhaps do not need an exercise programme at that point but it’s almost like they need something like an education programme.”