Skip to main content
. Author manuscript; available in PMC: 2022 Sep 1.
Published in final edited form as: Heart Lung. 2022 Apr 15;55:24–28. doi: 10.1016/j.hrtlng.2022.04.009

Table 2.

Integrated matrix of experiences of caregiver burden by dyad type.

Type II dyads: Caregiver-oriented
Dyads: 2, 4, 6, 7, 8, 10, 12
Burden
Mean = 19.43 (± 13.89)
Score range = 2–42
Type III dyads: Collaborative
Dyads: 1, 3, 5, 9, 11
Burden
Mean = 3.80 (± 4.27)
Score range = 0–10
Low caregiver burden
Dyads: 1, 3, 4, 7, 9, 11
Mean = 2.50 (± 13.89)
Score range = 0–6
“Maybe I, sometimes I think I’m putting so much on her. She needs a knee, replacement and I know it’s bad for her pushing me and she’s in pain, and if she don’t push me I’m in pain, so, you know, I feel for her at most, of the time, but she does it with no complaint.” (Patient 4)
“But like I say, I have really learned a lot being a care provider for her., Things that I didn’t know existed have really come along and helped me, to learn about her conditions and stuff.” (Caregiver 7)
“Patient: Most of the time we’re together. We do all the shopping, together. And we do the shopping for her antique business together.”, (Patient 2)
“I’ve always felt it’s a balance for your emotional health as well because, you learn, if you’re on a team, you’re not always going to win and you, have to come up with ways of, “I lost and what am I going to do with, that loss?” So, we’ve talked a lot about that and with eating too… there are a lot of things that he doesn’t like that I do, and I don’t cook with any salt although I did before we got together so I’ve tried to blend or connect with my eating habits and what I value with the social emotional and physical … I think we’re trying to complement each other with having those understandings.” (Caregiver 3)
High caregiver burden
Dyads: 2, 5, 6, 8, 10, 12
Mean = 23.33 (± 11.08)
Score range = 10–42
“…even to have someone come in once a week and, say, bathe her or, something. They said that’s available, but I haven’t found it, you know, all of that. Just to give me a break, you know, because it gets depressing, sometimes, you know, if you’re doing the same tasks over and over and you don’t feel as though you have an outlet.” (Caregiver 2)
“It’s been challenging because your whole life changes, and you go from having a social life to basically you don’t have any, and with the day in, day out that we really don’t see anybody, that’s very difficult. As far as caregivinggoes, sometimes you feel like you’re in a world all by yourself, that you’re forgotten about.” (Caregiver 8)
“I notice that when he’s in the overload I have to do a little extra, and then, sometimes I just feel tired. I do it, but I still feel tired.” (Caregiver 5)