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. Author manuscript; available in PMC: 2022 Jul 2.
Published in final edited form as: Palliat Support Care. 2021 Aug;19(4):397–404. doi: 10.1017/S1478951520000954

Table 1.

Qualitative Codes

Themes Codes Frequency Distribution
Theme 1: Caregiving facilitators
Subthemes 1.1 External Support
Positive support from medical team 74 12
Access to/support from family 19 10
Subtheme 1.2 Sense of Normalcy
Connection to outside world 23 10
Maintaining normalcy 21 8
Bringing items from home 18 8
Subtheme 1.3 Patient Wellness
Optimal patient health status 53 12
Minimal side effect burden 25 9
Subtheme 1.4 Coping Activities
Physical exercise 27 10
Organization strategies and routines 26 9
Relaxing activities 21 8
Theme 2: Caregiving challenges
Subtheme 2.1 Difficulties with transplant care instructions
tensions regarding caregiver-established rules 16 9
Subtheme 2.2 Managing patient’s physical and emotional health
Patient symptoms/health status 31 11
Managing patient’s psychological functioning 21 8
Subtheme 2.3 Caregiver psychological distress
Caregiver psychological distress 58 11
Theme 3: Roles in Recovery
Subtheme 3.1 Nursing responsibilities
Nursing responsibilities 37 10
Subtheme 3.2 Cleaning tasks
Cleaning/hygiene responsibilities 19 8
Subtheme 3.3 Dietary responsibilities
Dietary responsibilities 24 8
Theme 4: Assessment of the homebound experience
Subtheme 4.1 Homebound preferred over hospital setting
Perceptions of home environment: positive elements 41 12
Overall assessment of homebound program: positive elements 39 12
Overall assessment of homebound program: comparison of homebound to hospital experience 31 12
Subtheme 4.2 Positive outcomes
Overall assessment of homebound program: positive outcomes 15 8
Subtheme 4.3 Suggestions for improvement
Suggestions for improvement: logistics 21 9