Table 1.
Qualitative Codes
Themes | Codes | Frequency | Distribution |
---|---|---|---|
Theme 1: Caregiving facilitators | |||
Subthemes 1.1 External Support | |||
Positive support from medical team | 74 | 12 | |
Access to/support from family | 19 | 10 | |
Subtheme 1.2 Sense of Normalcy | |||
Connection to outside world | 23 | 10 | |
Maintaining normalcy | 21 | 8 | |
Bringing items from home | 18 | 8 | |
Subtheme 1.3 Patient Wellness | |||
Optimal patient health status | 53 | 12 | |
Minimal side effect burden | 25 | 9 | |
Subtheme 1.4 Coping Activities | |||
Physical exercise | 27 | 10 | |
Organization strategies and routines | 26 | 9 | |
Relaxing activities | 21 | 8 | |
Theme 2: Caregiving challenges | |||
Subtheme 2.1 Difficulties with transplant care instructions | |||
tensions regarding caregiver-established rules | 16 | 9 | |
Subtheme 2.2 Managing patient’s physical and emotional health | |||
Patient symptoms/health status | 31 | 11 | |
Managing patient’s psychological functioning | 21 | 8 | |
Subtheme 2.3 Caregiver psychological distress | |||
Caregiver psychological distress | 58 | 11 | |
Theme 3: Roles in Recovery | |||
Subtheme 3.1 Nursing responsibilities | |||
Nursing responsibilities | 37 | 10 | |
Subtheme 3.2 Cleaning tasks | |||
Cleaning/hygiene responsibilities | 19 | 8 | |
Subtheme 3.3 Dietary responsibilities | |||
Dietary responsibilities | 24 | 8 | |
Theme 4: Assessment of the homebound experience | |||
Subtheme 4.1 Homebound preferred over hospital setting | |||
Perceptions of home environment: positive elements | 41 | 12 | |
Overall assessment of homebound program: positive elements | 39 | 12 | |
Overall assessment of homebound program: comparison of homebound to hospital experience | 31 | 12 | |
Subtheme 4.2 Positive outcomes | |||
Overall assessment of homebound program: positive outcomes | 15 | 8 | |
Subtheme 4.3 Suggestions for improvement | |||
Suggestions for improvement: logistics | 21 | 9 |