Table 1.
Participant Characteristics
| Total Sample (n=63) |
Adolescents (n=28) |
Adults (n=35) |
|
|---|---|---|---|
| Age | n=62 | n=28 | n=34 |
| Yearsa | 20 (14, 32) | 14 (12, 15) | 32 (24, 37) |
|
| |||
| Demographics | |||
| Sex | n=63 | n=28 | n=35 |
| Female | 43 (68.3) | 17 (60.7) | 26 (74.3) |
| Ethnicity | n=63 | n=28 | n=35 |
| Non-Hispanic/Latino | 58 (92.1) | 27 (96.4) | 31 (88.6) |
| Race | n=62 | n=28 | n=34 |
| White/Caucasian | 55 (88.7) | 23 (82.1) | 32 (94.1) |
| Residence | n=63 | n=28 | n=35 |
| United States | 60 (95.2) | 27 (96.4) | 33 (94.3) |
| AMC-Specific | n=63 | n=28 | n=35 |
| Known Genetic Cause | 8 (12.7) | 6 (21.4) | 2 (5.7) |
| Spinal Involvement | 31 (49.2) | 13 (46.4) | 18 (51.4) |
| # of Upper Limb Regions Affected (0-8)a,b | 8 (4, 8) | 8 (4, 8) | 8 (4, 8) |
| # of Lower Limb Regions Affected (0-6)a,c | 6 (3, 6) | 6 (3, 6) | 5 (3, 6) |
|
| |||
| Orthopedic Surgeries | n=63 | n=28 | n=35 |
| History of Spinal Surgery | 10 (15.9) | 5 (17.9) | 5 (14.3) |
| # of Upper Limb Surgeriesa | 1 (0, 3) | 2 (0, 3) | 0 (0, 2) |
| # of Lower Limb Surgeriesa | 5 (3, 8) | 5 (3, 7) | 5 (2, 10) |
|
| |||
| GFAQa | n=63 | n=28 | n=35 |
| 9 (7, 9) | 8 (7, 9) | 9 (6, 9) | |
Abbreviations: AMC, Arthrogryposis Multiplex Congenita; #, number; GFAQ, Gillette Functional Assessment Questionnaire.
a
Data presented as median (25th, 75th percentile) rather than n (% of sample).
b
Eight possible upper limb regions affected: right and left hand, wrist, elbow, and shoulder.
c
Six possible lower limb regions affected: right and left foot/ankle, knee, and hip.