Table 1.

characteristics of PKU patients and the attitutes of the parents

		N	%
The age of child's diagnosis	In the scanning program	56	90.3
	1-2 age	4	6.5
	6 age and over	2	3.2
Kinship status	No	33	53.2
	2 degrees	23	37.1
	1st degree	6	9.7
Are there other childeren with PKU in the family?	No	54	87.1
	1 child else	8	12.9
Do you take your child regularly to check?	No/ Sometimes	11	17.7
	quarterly	33	53.2
	once in a month	13	21
	once a week/ biweekly	5	8.1
In general, who is going to control with child?	Mother	24	38.7
	Father	0	0
	Mother and father	38	61.3
Does the child take medication?	No	31	50
	Kuvan	7	11.3
	Neophe/protein powder	4	6.5
	Vitamin/fish oil	11	17.7
	I don´t know	9	14.5
Have you ever received a training on PKU or about the PKU diet?	Yes	48	77.4
	No	14	22.6

Note: PKU=Phenylketonuria