Table 1.
Patients’ and clinicians’ preferences regarding the use and content of an online PtDA to support kidney failure treatment modality decisions
| Questions / statements | Patients | Clinicians |
|---|---|---|
| An online PtDA to help patients make treatment modality decision for kidney failure seems* |
Very unhelpful = 6 (5%) Unhelpful = 10 (8%) Neutral = 36 (29%) Helpful = 49 (39%) Very helpful = 24 (19%) |
Very unhelpful = 0 (0%) Unhelpful = 0 (0%) Neutral = 5 (16%) Helpful = 21 (66%) Very helpful = 6 (19%) |
| A detailed description of all treatment modalities for kidney failure should be included in the PtDA* |
Yes = 94 (75%) No = 29 (23%) I don’t know = 2 (2%) |
Yes = 28 (88%) No = 4 (12% I don’t know = 0 (0%) |
| Information regarding the pros and cons of each treatment modality should be included in the PtDA* |
Yes = 107 (85%) No = 16 (13%) I don’t know = 2 (2%) |
Yes = 28 (88%) No = 4 (12%) I don’t know = 0 (0%) |
| Stories and experiences of peer patients on the treatment modalities should be included in the PtDA* |
Yes = 44 (35%) No = 79 (63%) I don’t know = 2 (2%) |
Yes = 23 (72%) No = 9 (28%) I don’t know = 0 (0%) |
|
Medical outcome information* (such as complication rates, hospitalisation) should be included in the PtDA |
Yes = 79 (63%) No = 44 (35%) I don’t know = 2 (2%) |
Yes = 23 (72%) No = 9 (28%) I don’t know = 0 (0%) |
|
Patient reported outcome information* (such as pain, fatigue, physical functioning) should be included in the PtDA |
Yes = 60 (48%) No = 63 (50%) I don’t know = 2 (2%) |
Yes = 25 (78%) No = 7 (22%) I don’t know = 0 (0%) |
|
Effects of the treatment modalities on social functioning and personal life* (such as being able to work, travel or do hobbies) should be included in the PtDA |
Yes = 85 (68%) No = 38 (30%) I don’t know = 2 (2%) |
Yes = 31 (97%) No = 1 (3%) I don’t know = 0 (0%) |
PtDA = Patient decision aid. *Note: this is a translation from Dutch to English