Table 3.

Needs and preferences of focus group participants on treatment modality education and decision-making, SDM, online PtDAs and outcome information

Topic	Needs and preferences
	Patients and Caregiver	Clinicians
Education and decision-making	Don’t forget the person behind the patient* Clearly define the patient journey and take the lead as primary practitioner* Provide mentorship and guidance throughout the educational and decision-making process*	Coordinate with colleagues and adjust the education based on the educational needs of patients* Evaluate how well patients understand the provided information* Explore how patients make their choices, and who was involved in the decision-making process*
SDM	Strive for an equal patient-physician relationship* Facilitate patients in preference elicitation and values-clarification* Explicitly communicate when the decision has to be made*	Explicitly communicate that the opinions and wishes of patients are important in the decision* Do not try to “sell” any treatment modality, even if they have superior medical outcomes*
Online PtDA	Exercise caution for “informational overload”* Strive for collaboration and integrate everything on one platform*	Consider clinical practice when designing the PtDA* Pay attention to culture and health literacy*
Outcome information	Give patients autonomy in viewing outcome information* Provide tailored outcome information when possible*	Provide guidance on the interpretation of treatment outcomes* Pay attention to data visualization*

SDM = Shared decision-making, PtDA = Patient decision aid. *Note: this is a translation from Dutch to English