Table 2.
Overview of EQ-5D-Y valuation studies which are published, data collection completed, underway
| Country/Region | Status of EQ-5D-Y value set | Departures from the protocol? | Additional Methodological research | How are values anchored? |
|---|---|---|---|---|
| Japan | Published—see Shiroiwa et al. [13] | cTTO designs with five blocks each with six health states; Same sample completed both DCE and cTTO tasks in face-to-face interviews | Mapping DCE data onto the cTTO data | |
| Slovenia | Published—see Prevolnik-Rupel et al. [12] | Standard | DCE included an adolescent sample aged between 11 and 17 years [23] | Rescaling based on the single state “33333” |
| Spain | Published—see Ramos-Goni et al. [14] | cTTO tasks switched from face-to-face to online settings part-way through | DCE included an adolescent sample aged between 11 and 17 years [23] | Rescaling based on the single state “33333” |
| Germany | Published—see Kreimeier et al. [15] | cTTO tasks switched from face-to-face to online settings part-way through | DCE also included in cTTO interviews to compare interview-based and online DCE results; DCE included an adolescent sample aged between 11 and 17 years [23] | Mapping DCE data onto the cTTO data* |
| Belgium | Data collection completed | cTTO tasks switched from face-to-face to online settings part-way through | Additional DCE respondents were included, whom completed tasks from the perspective of a child (8–12 years old) and adolescents (13–18 years old) | Rescaling based on the single state “33333”* |
| China (Mainland) | Date collection completed | Expanded cTTO design to allow possibility of modelling cTTO-only value set (a small orthogonal design with 18 states + 10 from protocol) | Methods to be determined | |
| Hong Kong | Date collection completed | both DCE and cTTO tasks administered in face-to-face CAPI | DCE and cTTO tasks using two perspectives: a child (10 year old) and adult’s own perspective | Methods to be determined |
| Hungary | Data collection completed | Standard | Additional four TTO tasks using adult’s own perspective | Rescaling based on the single state “33333”* |
| Indonesia | Data collection completed | Expanded TTO design (18 health states arranged orthogonal design + 5 suggested states + 2 states with higher level sum score) | Mapping DCE data onto the cTTO data* | |
| Paper-and-pencil survey for DCE | ||||
| Netherlands | Data collection completed | Expanded TTO design to allow possibility of modelling TTO-only value set (28 states divided into 3 blocks of 10 stats each; 33333 and at least one mild state in each block); cTTO tasks completed in online settings | An additional cTTO sample (n = 203) was collected, in which the cTTO task was framed asking respondents to indicate what they think a 10 year-old child would prefer | Different approaches used, including (1) Rescaling based on the single state “33333” and (2) mapping DCE data onto cTTO data |
| Australia | Underway | Expanded cTTO design to allow possibility of modelling cTTO-only value set; cTTO tasks planned in online settings | Additional DCE with duration and DCE with dead tasks | Different approaches planned: |
| (1) Rescaling based on the single state “33333”; and using other health states in cTTO as the sole anchor | ||||
| (2) Mapping DCE data onto cTTO data | ||||
| (3) using DCE with duration; (4) using DCE with dead questions | ||||
| US | Underway | Preparatory work underway | ||
| Brazil | Underway | Preparatory work underway | ||
| Malaysia+ | Underway | In all four cases, an expanded cTTO design to allow possibility of modelling cTTO-only value set (a small orthogonal design with 18 states + 10 from protocol) | A pilot DCE study of 400 individuals in each country/region, who will be randomised to the perspective of a hypothetical child from the following age groups: “5–7 years old”, “8–10 years old”, “11–13 years old” and “14–15 years old” | Different approaches planned: |
| Singapore+ | Underway | |||
| Taiwan+ | Underway | (1) Rescaling based on the single state “33333” | ||
| Vietnam+ | Underway | (2) Mapping DCE data onto cTTO data | ||
| (3) a hybrid model |
*For unpublished studies, we list here the anchoring method reported at the workshop, based on preliminary analysis
+Four different value sets for Malaysia, Singapore, Taiwan and Vietnam will be generated separately, but they follow the same study design and methodological add-ons