. Author manuscript; available in PMC: 2022 Jul 7.

Published in final edited form as: Mol Genet Metab. 2022 Mar 10;136(1):22–27. doi: 10.1016/j.ymgme.2022.03.003

Table 2.

Participant characteristics: values presented are mean (SD) or N (%) where indicated

Covariate	Overall	Tx ≤12mo	Tx >12mo to ≤24mo	Tx >24mo
Covariate	(N=19)	(N=8)	(N=9)	(N=2)
Male	9 (47.4%)	3 (37.5%)	4 (44.4%)	2 (100.0%)
Tx ≤12mo	8 (42.1%)	8 (100.0%)	0 (0.0%)	0 (0.0%)
Tx >12mo to ≤24mo	9 (47.4%)	0 (0.0%)	9 (100.0%)	0 (0.0%)
Tx >24mo	2 (10.5%)	0 (0.0%)	0 (0.0%)	2 (100.0%)
Age at follow-up (years)	12.3 (0.97)	11.4 (0.81)	12.8 (0.62)	12.9 (0.25)
IPSS	10.4 (3.4)	7.62 (2.39)	11.7 (1.87)	16.0 (1.41)
PSS at follow-up	10.5 (1.8)	9.73 (1.11)	11.4 (2.07)	9.5 (0.71)
Vineland Composite at follow-up	86.2 (11.7)	91.8 (7.52)	82.7 (13.2)	79.7 (14.6)
Vineland Daily Living Skills at follow-up	85.3 (15.8)	95.0 (10.9)	78.0 (16.2)	79.7 (16.0)

Tx- transplant, IPSS- Infant Physical Symptom Score, PSS- Physical Symptom Score