5. Outcomes: discussions of EoL/EoL care (primary).
Primary outcome: discussions of EoL/EoL care e.g. frequency, length, type, participants | |||||||
Study ID | Discussion with clinicians | Discussion with surrogates | Documented discussion EoL care planning | Number of questions in consultation | Conversation duration | Communication content | Conversation timing |
Agar 2017 | ‐ | ‐ | ‐ | ‐ | X Facilitated case conference intervention duration (non‐comparative) |
‐ | ‐ |
Au 2012 |
X (at last visit) Self‐reported questionnaire; 2 weeks after consultation |
X (since last visit) Self‐reported questionnaire; 2 weeks after consultation |
‐ |
‐ | ‐ | ‐ | ‐ |
Bernacki 2019 |
‐ | ‐ | X Conversation number/patient EMR review; after death |
‐ | X Physician report, post‐consultation (non‐comparative) |
X Conversation content/quality SIC domains/patient EMR review; after death; coded 0 to 4 on number of domains discussed and documented (≥ 1 SIC, discussion about: values/goals, prognosis/illness understanding, EoL care, life‐sustaining treatment preferences) |
X Timing of first documented SIC before death EMR review; after death |
Clayton 2007 |
‐ | ‐ | ‐ |
X Questions, concerns, items tallied across 9 QPL categories; post‐consultation; coded 112 questions QPL grouped in 9 categories; 85 issues covered by QPL |
‐ | ‐ | ‐ |
Lautrette 2007 |
‐ | ‐ | ‐ |
‐ | X At time of family conference with ICU staff |
‐ | ‐ |
Walczak 2017 |
‐ | ‐ | ‐ | X Number of questions, cues from patients, carers Coded audio‐recorded consultation; 1 week post‐CSP session; coding to identify number of direct questions, cues plus those on prognosis, EoL care, future care options, general issues |
‐ | ‐ | ‐ |
X: outcome assessed; ‐: outcome not reported.
CSP: communication support programme; EMR: electronic medical record; EoL: end of life; ICU: intensive care unit; QPL: question prompt list; SIC: serious illness conversation.