7. Outcomes: health system impacts (quality of care, concordance with preferences).

Secondary outcomes: health systems impacts (quality of EoL care, ratings of concordance with patient preferences for EoL care)
Study ID	Quality of EoL care (nurse rated)	Quality of EoL care (patient/family rated)	Ratings of concordance with patient preferences
Agar 2017	X Nurse ratings of · CAD‐EOLD (higher scores = more comfort) · SM‐EOLD (higher scores = lower symptom frequency) Face‐to‐face/telephone interview; as soon as possible after patient death	X Family ratings of · CAD‐EOLD last 7 days life (higher scores = more comfort) · SM‐EOLD last 90 days of life (higher scores = lower symptom frequency) · SWC‐EOLD last 90 days of life (higher scores = more satisfied) Face‐to‐face/telephone interview; 4 to 6 weeks after patient death	‐
Bernacki 2019	‐	‐	X PEACE scale, 2 subscales: · Peaceful Acceptance of Illness (acceptance of diagnosis, inner calm, feelings of being well‐loved); 5 questions, total score 5 to 20 · Struggle with Illness (feelings of upset, worry, anger, etc.), 7 questions, total score 7 to 28 Baseline, 2‐monthly
Epstein 2017	‐	X Caregiver evaluation of  quality of EoL care 2 months post‐mortem, 6 items	‐
Reinhardt 2014	‐	X Surrogates' ratings of · SM‐EOLD last 90 days of life (higher scores = lower symptom frequency) · SWC‐EOLD last 90 days of life (higher scores = more satisfied) · Satisfaction with care (higher scores = better care) Interview, questionnaire; baseline, 3 and 6 months	‐

X: outcome assessed; ‐: outcome not reported.

CAD‐EOLD: Comfort Assessment In Dying with Dementia; EoL: end of life; SM‐EOLD: Symptom Management at the EoL in Dementia; SWC‐EOLD: Satisfaction with Care at EoL in Dementia.