9. Outcomes: patient/carer quality of life.

Secondary outcomes: patient/family member/carer quality of life
Study ID	Patient quality of life	Timing (longest follow‐up)	Scale, scoring
Agar 2017	X	3‐monthly	Quality of life in Late‐stage Dementia (QUALID); 11‐item scale. Nurse‐rated No data
Bernacki 2019	X	Unclear	SF‐12 V2 health survey (QoL and general physical health function) No data
Epstein 2017	X	3‐monthly to 3 years	Composite QoL score as average of 5 z‐scored subscales: McGillQoL scale single item, McGill Psychological Well‐Being subscale, McGill Existential Well‐Being subscale, FACT‐G Physical Functioning subscale, FACT‐G Social Functioning subscale Research‐administered questionnaire/interview
Walczak 2017	X	1 month	Health‐related QoL (FACT‐G)

X: outcome assessed.

QoL: quality of life.