. 2022 Mar 5;13(3):271–280. doi: 10.1007/s12687-022-00585-0

Table 4.

Issues treated during communication of diagnosis

	Prenatal age diagnosis (PRE-D)	Postnatal age diagnosis (POST-D)
Issues treated	Sum of answers 3, 4, and 5 on the Likert scale: N (%)	Sum of answers 3, 4, and 5 on the Likert scale: N (%)	Sum of answers 3, 4, and 5 on the Likert scale: N (%)	Sum of answers 3, 4, and 5 on the Likert scale: N (%)	Sum of answers 3, 4, and 5 on the Likert scale: N°(%)
Fertility	31/41 (76%) NR: 2/41 (5%)	38/43 (88%) NR: 0	9/10 (90%) NR: 0	15/19 (79%) NR: 1/19 (5%)	4/5 (80%) NR: 0
Metabolic features	16/41 (39%) NR: 2/41 (5%)	28/43 (65%) NR: 0	6/10 (60%) NR: 0	10/19 (53%) NR: 1/19 (5%)	3/5 (60%) NR: 0
Cognitive features	20/41 (49%) NR: 1/41 (2.4%)	33/43 (77%) NR: 0	9/10 (90%) NR: 0	13/19 (68%) NR: 1/19 (5%)	4/5 (80%) NR: 0
Hormonal features	30/41 (73%) NR: 1/41 (2.4%)	32/43 (74%) NR: 0	9/10 (90%) NR: 0	13/19 (68%) NR: 0	4/5 (80%) NR: 0

Prenatal age diagnosis (PRE-D)

Postnatal age diagnosis (POST-D)

Total KS patients
(N 41)

Mothers
(N 43)

Fathers
(N 10)

Mothers
(N 19)

Fathers
(N 5)

Issues treated

Sum of answers 3, 4, and 5 on the Likert scale: N (%)

Sum of answers 3, 4, and 5 on the Likert scale: N°(%)

Fertility

31/41 (76%)

NR: 2/41 (5%)

38/43 (88%)

NR: 0

9/10 (90%)

NR: 0

15/19 (79%)

NR: 1/19 (5%)

4/5 (80%)

NR: 0

Metabolic features

16/41 (39%)

NR: 2/41 (5%)

28/43 (65%)

NR: 0

6/10 (60%)

NR: 0

10/19 (53%)

NR: 1/19 (5%)

3/5 (60%)

NR: 0

Cognitive features

20/41 (49%)

NR: 1/41 (2.4%)

33/43 (77%)

NR: 0

9/10 (90%)

NR: 0

13/19 (68%)

NR: 1/19 (5%)

4/5 (80%)

NR: 0

Hormonal features

30/41 (73%)

NR: 1/41 (2.4%)

32/43 (74%)

NR: 0

9/10 (90%)

NR: 0

13/19 (68%)

NR: 0

4/5 (80%)

NR: 0

NR, non-responders