Table 2.
Characteristics of the sarcoma the respondent [or person the respondent care (s/d) for] was diagnosed with
| Disease characteristics | All respondents N = 264 (%) |
|---|---|
| What was the type of tumor you [or the person you care(d) for] were diagnosed with? | |
| Bone sarcoma | 31 (12.6) |
| Soft tissue sarcoma | 120 (48.8) |
| Gastrointestinal stromal tumor | 71 (28.9) |
| Desmoid fibromatosis | 20 (8.1) |
| Prefer not to say | 4 (1.6) |
| Missing | 18 (6.8) |
| What was the location of the sarcoma you [or the person you care(d) for] were diagnosed with? | |
| Upper extremity | 16 (6.2) |
| Lower extremity | 61 (23.7) |
| Head/neck/scalp | 11 (4.3) |
| Retroperitoneal | 14 (5.4) |
| Heart/vascular | 4 (1.6) |
| Lung | 3 (1.2) |
| Gynecological | 24 (9.3) |
| Intra-abdominal | 87 (33.9) |
| Thorax | 28 (10.9) |
| Other | 5 (1.9) |
| Prefer not to say | 4 (1.6) |
| Missing | 7 (2.7) |
| What was the stage of the disease you [or the person you care(d) for] were diagnosed with? | |
| Localized | 174 (67.5) |
| Metastatic | 62 (24.0) |
| I don’t know | 15 (5.8) |
| Prefer not to say | 7 (2.7) |
| Missing | 6 (2.3) |
| What was the intention of the treatment you [or the person you care (d) for] had or are currently receiving? | |
| Curative | 107 (43.8) |
| Palliative | 57 (23.4) |
| Symptom control only | 32 (13.1) |
| I don’t know | 26 (10.7) |
| Prefer not to say | 22 (9.0) |
| Missing | 20 (7.6) |
| How long are you (or is the person with sarcoma) living with sarcoma? | |
| Median (range) | 4 Years (0-38) |