Table 1:

Demographic Data

Question	Response
What role do you play in life of child with HIE?
Mother	158 (96%)
Father (3), Grandparent (3), Aunt (1)	7 (4%)
Mother’s age at time of child’s birth (n=158)
< 18 years	3 (2%)
19–25 years	23 (14%)
26–34 years	96 (61%)
35–44 years	36 (23%)
Year of child’s birth (n=164)
<=2010	17 (10%)
2011–2015	34 (21%)
2016 to present	113 (69%)
Treated with hypothermia (n=164)	108 (66%)
Was an MRI brain done in NICU (n=164)	157 (96%)
Was there brain injury on MRI (n=157)	123 (78%)
Clinical outcome for your child (n=162)
Typical	36 (22%)
Mild	28 (17%)
Moderate	40 (25%)
Severe	42 (26%)
Loss from HIE	16 (10%)
When was the prognosis discussed with you?
Following birth	52 (32%)
During TH	48 (29%)
After the MRI	106 (64%)
Prior to discharge	52 (32%)
Don’t know	17 (10%)
Other	14 (8%)
Quality of communication in the NICU
1= very dissatisfied	13 (8%)
2	18 (11%)
3= neutral	48 (29%)
4	49 (30%)
5= greatly satisfied	35 (22%)
Quality of involvement in care of baby
1= very dissatisfied	11 (7%)
2	7 (4%)
3= neutral	20 (12%)
4	39 (24%)
5= greatly satisfied	88 (53%)