Table 1.

Demographics

	Congenital			Cyclic		Autoimmune/Idiopathic
Age, yr	<18		≥18	<18	≥18	<18	≥18
Patients	383		287	88	178	352	464
Age at last contact, yr	Median	8.5	26.6	9.0	39.4	6.8	45.5
	Mean	8.7	30.0	9.4	42.3	7.9	46.8
	Range	(0.3-17.9)	(18.0-82.0)	(1.2-17.9)	(18.1-92.8)	(1.1-17.9)	(18.0-90.7)
Years of clinical observation study	Median	4.9	16.5	5.4	15.2	3.8	8.9
	Mean	5.5	15.9	6.0	15.3	4.5	10.2
	Range	(0-17.3)	(0-31.4)	(0-15.5)	(0.1-32.2)	(0-16.1)	(0-30.8)
Years of observation by age	2119		4552	526	2722	1582	4712
Total years of observation by diagnosis*	6671			3248		6294

^*Total years of observation by all diagnostic groups: 16 213.