Table 1:

Patient and Family Caregiver Characteristics

	First Follow-Up				Second Follow-Up
	Patient (n = 14)		Family (n = 20)		Patient (n = 11)		Family (n = 13)
Characteristic	n (%)	M (SD)	n (%)	M (SD)	n (%)	M (SD)	n (%)	M (SD)
Gender
Male	11 (79)		4 (20)		9 (82)		2 (15)
Age (years)		38 (12.00)		59 (8.48)		40 (13.03)		61 (7.82)
Marital status
Single, never married	12 (86)		0		9 (82)		0
Married or partnered	1 (7)		15 (75)		1 (9)		9 (69)
Separated, divorced, or widowed	1 (7)		5 (25)		1 (9)		4 (31)
Education, years		11.50 (1.65)		7.13 (4.03)		11.55 (1.51)		5.58 (3.14)
Length of illness, yearsa		16.38 (11.72)				20.20 (12.18)
Family relation to patient
Mother			12 (60)				9 (69)
Father			3 (15)				2 (15)
Spouse			2 (10)				0
Otherb			3 (15)				2 (16)
Country of birth
United States	8 (57)		1 (5)		6 (55)		0
Mexico	4 (29)		18 (90)		4 (36)		12 (92)
El Salvador	2 (14)		1 (5)		1 (9)		1 (8)
Interview language
English	8 (57)		2 (10)		8 (73)		2 (15)
Spanish	6 (43)		18 (90)		3 (27)		11 (85)

^aData missing for one patient in first and second follow-up.

^bAunt, daughter, or grandmother.