Table 1.
Summary of potential courses of action needed to improve quality community care.
| Levels | Current challenge | Potential actions/measures | Overall aim |
|---|---|---|---|
| Research level | Limited evidence for benefits and effective assessment measures | Continue to build specific evidence for different disease severity, PD phenotype subpopulations, among persons who have cognitive impairment, and in all practice settings. | Generating evidence to inform best practice |
| Develop research with proper design, sufficient power and a proper regard for safety issues. | |||
| Make available more funding opportunities for non-pharmcological interventions | |||
| Limited translation of the research evidence to practice | Define recommendations on how to adapt research studies into practice. Use trained clinical Parkinson experts to deliver interventions in experimental studies consistently, with little variation across practices, and in accordance with guideline recommendations or research protocols | Refine the care strategy and its implementation. Inform future implementation efforts | |
| Instructor level | Limited expertise among professionals delivering the programs | Support PD expertise among instructors via specific training, adequate ongoing educational support, and continuous contact with people with PD (by increasing referrals for increased case load and thus, more expertise) | Providing safe evidenced-based practices (better care). |
| Reduce unnecessary procedures | |||
| Reduce unrealistic expectations in people with PD, particularly for those with a less favorable profiles for certain exercises | |||
| Patient level | Barriers to participation in exercise | Implement strategies to bypass common barriers such as fluctuations in health, concerns about safety, time management strategies, culturally appropriate care, insufficiently engaging exercise options, use of technology to facilitate access to expert care. | Increase participation via easy access to safe, cost free, engaging exercise oportunities |
| Provide programs that cost less, involve less travel, provide physical or psychological benefits and supervised by qualified professionals | |||
| Reduced awareness of such programs as options of care | Inform about access to these programs through awareness campagnes for people with PD regarding the existence evidence-based exercise programs and where such programs can be received | To generate informed people with PD that have active participation to make the right decisions for their health | |
| Organizational level | Slow dissemination of the new evidence-based practices | Create an organized infrastructure to provide support to exercise instructors and other implementers to introduce consistently changing practices and embrace additional changes when never new evidence emerges. | Facilitate quick efficient dissemination of the new evidence-based practices. |
| Use online communities to disseminate new research findings | Developing an evidence standard infrastructure for assuring and assessing the implementation of community practice | ||
| Access to programs in the community | Reduce PD-specific critical barriers to participation:
|
Making programs available and accessible to people with PD to promote better care and ultimately reduce costs to health care systems | |
| Reduced public awareness of existing programs in the community | Improve public awareness of how to access most beneficial exercise programs. Role for patient’s associations. | Raising awareness of evidence-based exercise programs to increased public interest in community exercise programs (and influence the direction of clinical research, and thus advance clinical practice) | |
| Unmonitored proliferation of programs | Redefine new care strategy for health system, definingclear desired outcomes and penalties for imposing practices upon people with PD that are not sufficiently evidence-based, including financial support and limited resources | Guarantee safe effective programs delivered |