Skip to main content
. 2022 Jun 30;12:896939. doi: 10.3389/fonc.2022.896939

Table 4.

Practical recommendations made by patients following alpha testing.

Recommendation Checklist ✓ Changes made × Changes not made Reason
Add Add room for other factors that may influence decision, e.g. social factors (STH10) × Not specified enough, covered some social aspects already
P.34 add “yes no maybe” (STH10) × No, but we did change the response
Change What to do if patients disagree with doctors’ recommendations (LTH8) × Unethical, decision-aid is supposed to be neutral
Consent form examples, emphasise quantity (LTH8) × Can differ between hospitals, leading?
Surrogacy versus carrying own baby (LTH8) × Not within remit
What happens at the clinic (LTH9) × Felt a lot of information already, but we did update the text (e.g. changes from fertility expert to fertility care team)
Signpost HEFA website (LTH9) × Already done
Case studies, possible side effects (STH10) × Would bias the decision aid, we do mention side-effects
How relatives can support decision maker × Already included
Possibility of fostering, does having had cancer affect chances? (SU3) × Felt inappropriate
Adoption issues after CT (SU3) × Felt inappropriate
Add POSITIVE cancer trial results (SU4) ×
P12, graph: add shaded area (STH10)
Move p. 35 to the end (SU4)
Omit Can be challenging numbering 1-4 (STH9) ×
Page 10, cut where it says “use space” as the women could bring a notebook (STH10)