Table 6.

Which components of the CFM resource were used?

Sundae Checklist – Point 21 (part a) Theme components used:	Patient Quote	Age	Cancer type	Recruited in oncology or fertility?
Graphs and tables	I thought they [graphs] were really clear, really helpful.	38	Breast	Oncology
Glossary	No, I think it’s a good way to – if somebody says something and ‘oh, I don’t quite understand what that is’ and then you can have a quick look.	36	Breast	Fertility
Decision pictures/flow charts	I did, and again – a lot more beneficial and helpful sometimes than what the actual information content could be.	34	Breast	Oncology
Decision pictures/flow charts	And again I think they’re hugely beneficial because it is that scrambled brain.	34	Breast	Oncology
Decision aid section	I did, I didn’t put the ticks, I didn’t give it a score but we sort of…. I mean it says do it before your treatment starts and I did do it before the treatment started…	37	Breast	Oncology
Decision aid section	… I just thought how I felt with each statement and it came to the conclusion that you know, I didn’t want to do any of them … it affirmed what I wanted to do…	20	Lymphoma	Fertility
Graphs and tables	I think the thing that I remember the most was this diagram on Page 7 [graph 1] and for all the people that are putting off having kids…	43	Breast	Oncology
Sections used	So the green bit [Introduction] because it’s describing what the booklet’s about. Then the blue bit [Other fertility decisions to consider] – it looks like a biology text book.	30	Breast	Fertility
Sections used	I used the blue bit [Other fertility decisions to consider].	30	Breast	Fertility
Sections helpful	Egg freezing and embryo freezing.	38	Breast	Oncology
Sections helpful	I like this graph and picture and those tables … Pink section [Options] and this [Graphs 1 and 2].	29	Breast	Fertility
Sections helpful	I think the section for ovarian suppression, it helped to make a decision to do something…	40	Breast	Fertility
Sections helpful	It was just on the benefits of the ovarian suppression and things like that…	38	Breast	Fertility
Sections helpful	I just kept going over the sections where it gives you the options and I just kept reading the statistics. I thought having the statistics was really helpful.	25	Ovarian	Oncology
Sections helpful	Just the back table [affected the decision].	30	Breast	Fertility
Sections unhelpful	[How cancer treatment affects your fertility] made me even more depressed than I already was.	25	Ovarian	Oncology
Sections not used	Again I didn’t use it [decision aid section]. I did go through it but I didn’t use it because of what I’d actually decided on and what I was thinking and what I was going through.	34	Breast	Oncology
Sections not used	I didn’t use it if I’m honest [signposting].	23	Germ cell - Ovarian	Oncology
Sections not used	Oh, I didn’t even notice these graphs!	25	Ovarian	Oncology
Not used at all	It was laziness to be honest. When I got sent the attachments I had quite a few appointments going on around then and that’s when I got taken into hospital as well. So after that I completely forgot.	21	Lymphoma	Fertility
Writing	I just kind of answered what it said so it takes my opinion on things and I write down what I like, what I liked about it, what I didn’t – literally how it says. Which I thought was quite a helpful way to organise my thoughts and balance up my opinions really…	20	Lymphoma	Fertility
Note taking	Yeh, cos you make like a note of what you want to ask a nurse or a doctor.	16	Lymphoma	Oncology
Realisation of age	My biggest eye opener was the graph. I remember looking at it and thinking right, my treatment is only here which means that my fertility would be technically lower anyway and it helped guide the decision a little bit that I made.	34	Breast	Oncology
Realisation of age	… That quite surprised me because I didn’t realise that, for example I’m in thirties so I didn’t realise I had so little chance! And I think Graph 2, when I look at it, it freaks me out actually….	29	Breast	Fertility
Understanding and knowledge	… We went down the embryo bit. Just because we felt it was the better option. So we did read that a little bit…	30	Lymphoma	Fertility
Understanding and knowledge	… Well just even having the sections about how cancer affects your fertility because it hadn’t been something I really considered when I first got the diagnosis so it was useful to understand that there would be an impact…	30	Lymphoma	Fertility
Understanding and knowledge	… I was more worried about the hormone therapy so it was this that helped me understand a bit more about how it might affect me.	36	Breast	Fertility
Understanding and knowledge	It was the explanation of each of them – the fertility options. They were what I’d have needed to know.	20	Lymphoma	Fertility