Staying in control |
|
‘It [self‐management] means being in control. That I take action when I feel something is wrong. […] As so many things in life, I'd like to be in control about that [being informed about the disease]. It's not always possible. You are dependent of the doctor's schedule to a certain degree, but I understand that. That's okay. I'm not the director myself, but I'm the assistant director’. (P3) |
Taking responsibility |
Listening to your body and its signals
Dealing with symptoms on your own when possible, seek help otherwise
Always continue thinking for yourself
|
‘In the end I'm the one making the decision about what I eat and which medication I take. So, I think that I have the ultimate responsibility [about my health]’ (P7) |
Staying optimistic |
|
‘My optimism is an instrument to fight the situation. Every day I want to be happy with everything that's surrounding me. Because of the cancer I am much more aware of that, which is also an instrument to feel stronger’ (P7) |
Seeking distraction |
|
‘For me, that [seeking distraction] is very important. […] I've picked up an old stamp collection again, that's a mess now. Well yeah, I'm looking for a purpose and distraction—when it's not possible with others, you also have to keep yourself busy’. (P13) |
Acknowledging your symptoms and finding acceptance |
Accepting that the disease has become part of your life
Accepting that you cannot control everything
Adjusting your goals; make less strict demands on yourself
Not being shy to speak about your illness and its limitations to others
|
‘I dare to speak up for everything—when I'm talking with other people—I do not care what they say. I tell them about my limitations, so that they know about it’. (P1) |
Seeking reassurance |
|
‘There are so many things that can scare you, because you simply do not know. I need someone who says “you do not have to worry”. It is normal or it will pass by, or you have to learn how to deal with it in life’. (P9) |