Enabling patients to self‐manage |
Advice can be applied immediately (without the support of a healthcare provider)
Compare your well‐being over time
Determine priority to manage symptoms based on colour‐based overview and take action based on orange and red scores
Scores on topics could confirm your own feelings
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‘The red scores [on a topic in Oncokompas]—then apparently you suffer from it [the symptoms] and it needs attention. Then I have a look [at the information and advice] and think “Do I recognize this? What do I do with it? Can I do something about it on my own, or do I need help?” And with the orange scores I just have a look “What's going on here? And how can I prevent that it [the topic] turns from an orange score into a red score? How do I get it back into green?” That I do not suffer from it anymore’. (P15) |
Personal library/resources |
Overview of supportive care options
Attention for the psychological impact of cancer
Possible to get back to the advice in Oncokompas
Fast and simple way to obtain information
Many topics are covered profoundly within Oncokompas
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‘[I've learned] that there are many options to get support. And now you know exactly—well, that it is advised to get support or not. Or that the advice is to talk about certain things with people in your environment, that helped me’. (P16) |
Discuss symptoms with healthcare provider |
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‘For example, I can print my results. If I can take my results to my general practitioner or whoever, so I can say “Well, look at this, this is the advice I got [from Oncokompas].” I think that's useful’. (P9) |
Reliability |
Evidence‐based
Professional lay‐out
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‘I think that it is easier for people to find information established by research among cancer patients themselves. You can find a lot of information on the Internet about what can happen to you, and so many websites tell you different things. So, I think that this [Oncokompas] is very nice to have’. (P20) |
Accessibility |
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‘I thought that it was pleasant to just use it [Oncokompas] by myself, at home’. (P16) |
Why recommend Oncokompas to other patients? |
Oncokompas could provide solutions that you do not think about yourself
Oncokompas can be useful for people who are less assertive
Important to analyse yourself and Oncokompas could support this
Specific recommendation to others depends on individual person
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‘I think—for people who are not able to—or who do not want to—for whatever reason—search for information by themselves and to be empowered …—because that is necessary when you are in the hospital, to be assertive. I think that this [Oncokompas] can be very useful for those people’. (P3) |