TABLE 5.

Experiences during usage of Oncokompas and recommendations for further improvements

Themes		Subthemes	Example of a subtheme quotation
Content	… is confronting	Advice feels ‘too intense’ Advice feels judgmental Confronting when topics need attention or support (i.e., having orange or red scores on topics) Confronting to read about having children, when you are not able to become pregnant/have children	‘For example, with the topic “activities of daily living.” I am less fit and then I got the advice to get a personalized rehabilitation plan. Then I just thought like “Well, that's solution is just too ‘heavy’ for my problems. Because I just think I'm less fit, but that applies for many people. I just have to exercise and walk more than I do now, but a personalized rehabilitation plan … […]” That's no tailored advice.’ (P9)
	… feels not applicable	Information and advice within Oncokompas are already known Referral to healthcare providers is unnecessary, when patient is already treated by that specific healthcare professional Advice does not match with patients’ preferences Advice is not specific enough (tailoring)	‘—that topic is about fatigue. Well, then you can read all about that and about what you can do. That you have to exercise more. Well yeah … I know all those things. And my physiotherapist also tells me that. […] to be honest, it does not get me anywhere’. (P22)
	… is missing	Missing information and advice about specific symptoms Topic ‘sexuality’ in Oncokompas is not sufficient	‘An orange score—your social life [the topic]. It is only about loneliness. Well, I am not lonely. People who have cancer may feel lonely. […] For me it's to limited. Your social life, when you have always been a member of a sport club and you cannot walk anymore because your leg has been amputated because of cancer, that's something different than being lonely, right? I think that [the information and advice] is too limited’. (P3)
	… is difficult to understand	Referral to healthcare provider is too generic; not clear which healthcare professional is meant Complexity of PROMs: ○ Some questions can be interpreted in different ways ○ Some questions are difficult to answer because some days you feel different than other days	‘Then Oncokompas tells me, ‘Please contact your healthcare provider’. Well … who is that healthcare provider? I have like three, four physicians …’ (P9)
Technical aspects	Structure of the application	Flexibility lacks within the application: It is not possible to return to the overview with topics (when topics have been chosen) It is not possible to remove topics after they have been chosen in the topics‐overview	‘And then you cannot go back to the overview of all the topics [within Oncokompas]. I tried, but it is not possible. […] and when you start the questions, you cannot go back. But you should be able to go back’. (P2)
	Accessibility	Facilitate compatibility of the application on your mobile phone Annoying when you are not able to log in to the application (e.g., when you forgot your password) It could be a barrier to create an account with a password	‘I was thinking—it should be available for everyone. […] when you first have to create an account—that's the downside—and of course I lost my password … it is accessible, because of course you can create an account. But for me it is a barrier. […] when you just want to have a quick look, you have to create an account’. (P9)
	Preferred settings	Prefer to set settings yourself, for example: ○ How often you want to receive a reminder for Oncokompas ○ Whether or not the page jumps to the next question when answering question	‘That depends on the stage of the disease you are in [wanting to receive reminders to fill in Oncokompas]. Basically, you are getting better over time. However, not with every type of cancer, but often people get better. So, I think then there is less need. […] I would say, a little more often in the initial phase of the disease’. (P3)
Functional aspects	User instructions	Within the application: Add additional instructions about the possibility to fill in Oncokompas multiple times Add additional instructions about the possibility to choose (multiple) topics in Oncokompas It is not clear that Oncokompas remembers your given answers, so that you can fill in Oncokompas at a later moment, right where you left off The question if you are sure you want to fill in all topics within Oncokompas has to be displayed more prominently Concerning the application: Not completely clear what Oncokompas is before first use	‘Because initially, I received [the invitation for] Oncokompas by mail, right? For me it was a bit unclear what I could do with it [Oncokompas] exactly. Then I just started to use it anyway’. (P2)
	Time investment	It takes too much time to fill in the PROMs Add an indication how much time it takes to complete topics A functionality was missed which gives an indication of the progression regarding completion	“And just add information on how much time it takes to address that specific topic. That you say something like—normally it takes four minutes, or ten minutes or whatever. So that someone can say “I'll do that topic next time.”’ (P2)
	Peer‐to‐peer contact	Add a functionality which makes it possible to exchange tips with peers	‘For example, a small forum—[…] that [tips from other people with cancer] would be nice’. (P6)
	Reminders and updates	Useful to receive reminders to use Oncokompas periodically Notify users when new content is available	‘At one point I was using it [Oncokompas] and when I got tired, I thought “I'll let it rest for a while.” And then I was busy again with 1001 other things and you have to be reminded to use it [Oncokompas] again. […] it would be useful then [to get a reminder]’. (P7)
Usage	Motivation	It can be hard to find intrinsic motivation to get started with advice given in Oncokompas When the healthcare provider could see the results within Oncokompas, this would motivate to fill in Oncokompas more seriously It is more likely that people use Oncokompas when they experience symptoms in their daily life Curiosity about the advices within Oncokompas could motivate use Using Oncokompas on recommendation of the healthcare provider	‘When my situation changes and it gets worse—well, I see it [Oncokompas] as a reference book, where I can find information about this and that, about what I can do myself. Or where I can find help. […] when it's not necessary I think it's nonsense to use it [Oncokompas]. You know, like when I am talking to you on the phone right know—I just feel good. I do not feel the urge to read information [in Oncokompas] about what could happen to me, so to speak’. (P22)
	Reasons for non‐use	Registration was not possible due to technical problems Not owning a computer Invitation mail to register for Oncokompas ended up in the spam box Hard to use a laptop due to concentration problems Being busy with other things; using Oncokompas had no priority	‘I am sure that it [Oncokompas] will support me in the future, but at the moment it's so busy—and it takes a lot of energy to sit behind a laptop. So that's why it has not happen yet [using Oncokompas]’. (P20)