| Domain 1: Research team and reflexivity | ||
|---|---|---|
| Personal characteristics | ||
| Interviewer/facilitator | Bryan Sisk (BAS) / Anna Kerr (AK) | Title page |
| Credentials | MD, MSCI / PhD | Title page |
| Occupation | Assistant Professor Pediatric Hematology and Oncology / Assistant Professor of Primary Care | Title page |
| Gender | Male/female | – |
| Experience and training | BAS and AK are trained in qualitative research methods and have published qualitative research with patient/family participants | Methods [6] |
| Relationship with participants | ||
| Relationship established | BAS and AK held an informational webinar for interested participants | Methods [5] |
| Participant knowledge of the interviewer | BAS and AK introduced themselves and their roles in the project before each interview | – |
| Interviewer characteristics | Participant were informed that BAS is a pediatric oncology physician specializing in vascular anomalies and AK is a medical educator with a PhD in communication | Methods [5, 6] |
| Domain 2: Study design | ||
|---|---|---|
| Theoretical framework | ||
| Methodological orientation and theory | Thematic analysis | Methods [6] |
| Participant selection | ||
| Sampling | Participants were recruited from two patient support groups | Methods [5] |
| Method of approach | Informational webinar and recruitment flyers via patient advocacy organizations’ websites and social media platforms | Methods [5] |
| Sample size | 24 | Results [7] |
| Non-participation | 25 participants were contacted. 1 participant did not answer during the scheduled interview | – |
| Setting | ||
| Setting of data collection | Data were collected via videoconference and phone interviews | Methods [5] |
| Presence of non-participants | Non-participants may have been present if participants completed the interview in their home or another public setting | – |
| Description of sample | 3 men, 21 women. Ages ranging from 21 to 54 years. 22 identified as White, 1 as Black or African American. 4 were Hispanic, Latin, or Spanish. Data collected between June and October 2021 | Results [7] & Table 2 |
| Data collection | ||
| Interview guide | Interviews were semi-structured. The guide explored the child’s disease, barriers and facilitators to care, and communication experiences | Methods [5] |
| Repeat interviews | None | – |
| Audio/visual recording | The interviews were audio-recorded | Methods (6) |
| Field notes | BAS and AK drafted memos after each interview of initial themes and insights | – |
| Duration | Interviews ranged in duration from 39 to 73 min (M = 60 min) | Methods [5] |
| Data saturation | We reached saturation after coding 10 interviews | Methods [5] |
| Transcripts returned | No | |
| Domain 3: Analysis an findings | ||
|---|---|---|
| Data analysis | ||
| Number of data coders | Three | Methods [6] |
| Description of the coding tree | Open coding, iterative thematic coding, and the coding validity check is described in methods | Methods [6] |
| Derivation of themes | We considered the Agency for Healthcare Research and Quality’s components of access to care while coding. However, final themes were derived during analysis | Methods [6] |
| Software | Dedoose | Methods [6] |
| Participant checking | None | – |
| Reporting | ||
| Quotations presented | Participant quotations were used to illustrate the themes. All quotes were identified using the participant number | Results [7–12] & Table 3 |
| Data and findings consistent | Data presented and the findings are consistent | – |
| Clarity of major themes | Major themes are presented clearly in text, table, and figure formats | Results [7–12], Fig. 1, & Table 3 |
| Clarity of minor themes | Minor themes are presented in-text and in a table | Results [7–12] & Table 3 |