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. Author manuscript; available in PMC: 2022 Jul 17.
Published in final edited form as: Birth Defects Res. 2022 May 28;114(12):631–644. doi: 10.1002/bdr2.2045

TABLE 1.

Congenital hydrocephalus cases and total births for participating registries by region, time period, and registry type, International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR)

Registrya Region Type of Registry ETOPFA policy Period Total birthsb Total CH casesc
Argentina RENAC SA H No 2009–2014 1,023,108 757
Chile Maule SA H No 2002–2014 172,742 35
Colombia Bogotá SA H No 2000–2014 407,394 114
Colombia Cali SA H No 2011–2014 27,564 3
Czech Republic EU P Yes 2000–2014 1,581,924 580
France Paris EU P Yes 2000–2014 397,461 495
Germany Saxony Anhalt EU P Yes 2000–2014 260,902 159
Iran TROCA AS H Yes 2000–2012 236,882 519
Israel SMC AS H Yes 2000–2014 201,660 27
Italy Lombardy EU P Yes 2003–2012 133,182 92
Italy Tuscany EU P Yes 2000–2014 436,081 146
Malta MCAR EU P No 2000–2013 56,623 18
Mexico Nuevo Leon NA P No 2011–2014 348,580 54
Mexico RYVEMCE NA H No 2000–2013 299,560 194
Netherlands Northern EU P Yes 2000–2014 274,223 110
Slovak Republic EU P Yes 2001–2013 722,978 326
South America ECLAMC SA H No 2000–2014 2,196,092 3,124
Spain ECEMC EU H Yes 2000–2013 1,372,874 516
Sweden EU P Yes 2000–2014 1,546,347 642
UK Wales EU P Yes 2000–2014 503,455 431
Ukraine OMNI Net EU P Yes 2000–2013 404,172 347
USA Arkansas NA P Yes 2000–2012 508,654 303
USA Atlanta NA P Yes 2000–2008 474,708 443
USA Texas NA P Yes 2000–2012 5,033,546 3,383
USA Utah NA P Yes 2000–2012 672,568 294

Abbreviations: AS, Asia; CH, congenital hydrocephalus; ETOPFA policy, elective termination of pregnancy for fetal anomalies allowed in the country where the registry is located; EU, Europe; H, Hospital-based system; NA, North America; SA, South America; P, Population-based system.

a

Each registry has different case ascertainment period, however, we have defined as before prenatal day 7 for all registries for this study. More information could be found at Bakker et al., 2019.

b

Total births: total number of births (live births + stillbirths).

c

Total CH cases: total number of CH cases (live births + stillbirths + ETOPFA).