TABLE 2.
Number of congenital hydrocephalus cases by pregnancy outcomes (live births, stillbirth, ETOPFA), early neonatal deaths, and phenotypic characteristics for participating registries, International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR), 2000–2014
| Registry | Live birth cases | Stillbirth cases | ETOPFA cases | Early neonatala death cases | Non-syndromic cases | Non-syndromic early neonatala death cases | Syndromic/MCA cases | Syndromic/MCA early neonatala death cases |
|---|---|---|---|---|---|---|---|---|
| Argentina RENAC | 719 | 38 | - | 162 | 426 | 49 | 293 | 113 |
| Chile Maule | 30 | 5 | - | 4 | 15 | 1 | 15 | 3 |
| Colombia Bogotá | 108 | 6 | - | 0 | 88 | 0 | 20 | 0 |
| Colombia Cali | 3 | 0 | - | 0 | 3 | 0 | 0 | 0 |
| Czech Republic | 295 | 30 | 255 | 17 | - | - | - | - |
| France Paris | 285 | 8 | 202 | 0 | 225 | 0 | 60 | 0 |
| Germany Saxony Anhalt | 87 | 10 | 62 | 2 | 50 | 0 | 37 | 2 |
| Iran TROCA | 287 | 109 | 123 | 21 | - | - | - | - |
| Israel SMC | 27 | 0 | - | 3 | 25 | 3 | 2 | 0 |
| Italy Lombardy | 47 | 8 | 37 | 0 | 26 | 0 | 21 | 0 |
| Italy Tuscany | 52 | 7 | 87 | 2 | - | - | - | - |
| Malta MCAR | 16 | 2 | - | 0 | 9 | 0 | 7 | 0 |
| Mexico Nuevo Leon | 54 | 0 | - | 6 | - | - | - | - |
| Mexico RYVEMCE | 165 | 29 | - | 6 | 108 | 3 | 57 | 3 |
| Netherlands Northern | 63 | 9 | 38 | 7 | 31 | 2 | 32 | 5 |
| Slovak Republic | 261 | 9 | 56 | 38 | 143 | 7 | 118 | 31 |
| South America ECLAMC | 2,877 | 247 | - | 151 | 1,458 | 57 | 1,419 | 94 |
| Spain ECEMC | 295 | 13 | 208 | 5 | 37 | 0 | 258 | 5 |
| Sweden | 325 | 5 | 312 | 6 | 222 | 0 | 103 | 6 |
| UK Wales | 208 | 14 | 209 | 10 | 103 | 3 | 105 | 7 |
| Ukraine OMNI Net | 196 | 40 | 111 | 12 | 131 | 3 | 65 | 9 |
| USA Arkansas | 271 | 25 | 7 | 14 | - | - | - | - |
| USA Atlanta | 338 | 55 | 50 | 10 | - | - | - | - |
| USA Texas | 3,225 | 99 | 59 | 108 | - | - | - | - |
| USA Utah | 238 | 28 | 28 | 11 | 99 | 2 | 139 | 9 |
Abbreviations: ETOPFA, elective terminations of pregnancy for fetal anomalies; MCA, multiple congenital anomalies.
a
Early neonatal = before postnatal day 7.