TABLE 3.
Adjusted Model 1 | Adjusted Model 2 | ||||||||
---|---|---|---|---|---|---|---|---|---|
Yes | 95% CI | 95% CI | |||||||
N (%) | β | Lower | Upper | p | β | Lower | Upper | p | |
Medical challenges | |||||||||
Total number of medical challenges, mean (SD) | 2.8 (2.0) | 0.246 | 0.074 | 0.419 | 0.006 | 0.195 | 0.013 | 0.377 | 0.035 |
Difficulty of going to multiple medical institutions | 32 (25.6) | 0.214 | 0.046 | 0.382 | 0.013 | 0.180 | 0.012 | 0.349 | 0.036 |
Welfare challenges | |||||||||
Total number of welfare challenges, mean (SD) | 5.3 (4.4) | 0.298 | 0.125 | 0.471 | 0.001 | 0.264 | 0.090 | 0.438 | 0.003 |
Lack of consultants and contacts regarding financial support systems | 25 (20.0) | 0.251 | 0.081 | 0.421 | 0.004 | 0.237 | 0.069 | 0.404 | 0.006 |
Lack of knowledge on the part of supporters (welfare facility personnel and government personnel) regarding 22q11.2 deletion syndrome | 60 (48.0) | 0.284 | 0.113 | 0.455 | 0.001 | 0.259 | 0.089 | 0.429 | 0.003 |
No daycare center suitable for the characteristics and traits of the individual with 22q11.2 deletion syndrome | 31 (24.8) | 0.294 | 0.124 | 0.465 | 0.001 | 0.268 | 0.098 | 0.438 | 0.002 |
Unable to go to the daycare center even if one is available | 12 (9.6) | 0.203 | 0.026 | 0.380 | 0.025 | 0.162 | −0.017 | 0.341 | 0.075 |
No support available when parents are exhausted and need a respite | 25 (20.0) | 0.352 | 0.191 | 0.514 | 0.000 | 0.322 | 0.159 | 0.486 | 0.000 |
Lack of understanding in the workplace | 6 (4.8) | 0.264 | 0.089 | 0.439 | 0.003 | 0.239 | 0.065 | 0.413 | 0.008 |
Lack of residences such as group homes | 14 (11.2) | 0.194 | 0.005 | 0.384 | 0.045 | 0.161 | −0.028 | 0.350 | 0.094 |
Note: Bold represents statistically significant. Adjusted Model 1: multivariate regression analysis adjusting parental age, parental sex, family income, marital status, child age, and child sex. Adjusted Model 2: multivariate regression analysis adjusting parental age, parental sex, family income, marital status, child age, child sex, and total number of child's comorbidities.
Abbreviations: β, standardized regression coefficient; CI, confidence interval.